About the European Genome-phenome Archive (EGA)
The European Genome-phenome Archive (EGA) is a service for permanent archiving and sharing of all types of personally identifiable genetic and phenotypic data resulting from biomedical research projects. The EGA contains exclusive data collected from individuals whose consent agreements authorise data release only for specific research use or to bona fide researchers. The EGA provides the necessary security required to control access, and maintain patient confidentiality, while providing access to those researchers and clinicians authorised to view the data. In all cases, data access decisions will be made by the appropriate data access-granting organisation (DAO) and not by the EGA. The DAO will normally be the same organisation that approved and monitored the initial study protocol or a designate of this approving organisation.
Further details of EGA's data access policy, system architecture, security and data submission, are described in the introduction to the EGA or the The European Genome-phenome Archive of human data consented for biomedical research paper.
Since 2013 and through a collaboration between the European Bioinformatics Institute and the Centre for Genomic Regulation, The European Genome-phenome Archive (EGA) is jointly managed and available at both institutions: EGA-EBI and EGA-CRG"
For additional information about the EGA, please contact: