Study

Count Me In (CMI): The Metastatic Breast Cancer (MBC) Project (CMI-MBCproject)

Study ID Alternative Stable ID Type
phs001709 Cohort

Study Description

Count Me In - The Metastatic Breast Cancer Project: A Patient-Driven Research Initiative to Accelerate Metastatic Breast Cancer Research

The Metastatic Breast Cancer Project (MBCproject; mbcproject.org) is a research study that directly engages patients with metastatic breast cancer via social media and advocacy groups and empowers them to accelerate cancer research by sharing their samples and clinical information. The goal is to create a publicly available dataset of genomic, molecular, clinical, and patient-reported data to enable research. Patients in the US or Canada may register online. Registered patients are sent an online consent form that asks for permission to obtain and analyze their medical records, tumor tissue, saliva, and blood samples. Once enrolled, patients are sent a saliva kit and asked to mail back a saliva sample, which is used to extract germline DNA. Study staff contact participants' medical providers and obtain medical records and a portion of their stored tumor biopsies. Patients may be asked to mail in a blood sample, which is used ... (Show More)

Archive Link Archive Accession
dbGaP phs001709

Who archives the data?

There are no publications available