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Impact of genetic variants in clinical outcome of a cohort of patients with oropharyngeal squamous cell carcinoma

Caracterization of somatic variants in patients with OpSCC

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DAC Barretos Cancer Hospital

DATA ACCESS AGREEMENT These terms and conditions govern access to the managed access datasets (details of which are set out in Appendix I) to which the User Institution has requested access. The User Institution agrees to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom XXXXX grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: XXXXX and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. User Institution(s): The Institution that has requested access to the Data. XXXXX: Your Institution details here 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. 6. The User Institution agrees that the Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. The User Institution agrees to follow the Fort Lauderdale Guidelines (http://www.wellcome.ac.uk/stellent/groups/corporatesite/@policy_communications/documents/web_document/wtd003207.pdf ) and the Toronto Statement (http://www.nature.com/nature/journal/v461/n7261/full/461168a.html). This includes but is not limited to recognising the contribution of the Data Producers and including a proper acknowledgement in all reports or publications resulting from the use of these Data. 8. The User Institution agrees to follow the Publication Policy in Appendix III. This includes respecting the moratorium period for the Data Producers to publish the first peer-reviewed report describing and analysing these Data. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and to follow the U.S. National Institutes of Health Best Practices for the Licensing of Genomic Inventions (2005) (https://www.icgc.org/files/daco/NIH_BestPracticesLicensingGenomicInventions_2005_en.pdf ) in conformity with the Organisation for Economic Co-operation and Development Guidelines for the Licensing of the Genetic Inventions (2006) (http://www.oecd.org/science/biotech/36198812.pdf ). 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify XXXXX within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify XXXXX prior to any significant changes to the protocol for the Project. 14. The User Institution will notify XXXXX as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. XXXXX may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary for the Data Producers to alter the terms of this agreement from time to time. As an example, this may include specific provisions relating to the Data required by Data Producers other than XXXXX. In the event that changes are required, the Data Producers or their appointed agent will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. 19. This agreement (and any dispute, controversy, proceedings or claim of whatever nature arising out of this agreement or its formation) shall be construed, interpreted and governed by the laws of England and Wales and shall be subject to the exclusive jurisdiction of the English courts.

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001004430 Cancer Genomics

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID File Type Size Located in
EGAF00003940707 bam 321.8 MB
EGAF00003940708 bam 331.0 MB
EGAF00003940709 bam 782.3 MB
EGAF00003940710 bam 219.1 MB
EGAF00003940711 bam 543.2 MB
EGAF00003940712 bam 597.8 MB
EGAF00003940713 bam 438.8 MB
EGAF00003940714 bam 747.0 MB
EGAF00003940715 bam 702.6 MB
EGAF00003940716 bam 881.7 MB
EGAF00003940717 bam 439.7 MB
EGAF00003940718 bam 271.6 MB
EGAF00003940719 bam 531.6 MB
EGAF00003940720 bam 611.1 MB
EGAF00003940721 bam 293.7 MB
EGAF00003940722 bam 274.3 MB
EGAF00003940723 bam 492.9 MB
EGAF00003940724 bam 267.1 MB
EGAF00003940725 bam 372.6 MB
EGAF00003940726 bam 191.3 MB
EGAF00003940727 bam 248.9 MB
EGAF00003940728 bam 242.7 MB
EGAF00003940729 bam 506.3 MB
EGAF00003940730 bam 528.3 MB
EGAF00003940731 bam 608.0 MB
EGAF00003940732 bam 618.1 MB
EGAF00003940733 bam 533.5 MB
EGAF00003940734 bam 401.7 MB
EGAF00003940735 bam 573.3 MB
EGAF00003940736 bam 581.6 MB
EGAF00003940737 bam 377.8 MB
EGAF00003940738 bam 317.3 MB
EGAF00003940739 bam 336.2 MB
EGAF00003940740 bam 575.6 MB
EGAF00003940741 bam 233.7 MB
EGAF00003940742 bam 493.1 MB
EGAF00003940743 bam 470.1 MB
EGAF00003940744 bam 423.1 MB
EGAF00003940745 bam 299.7 MB
EGAF00003940746 bam 155.5 MB
EGAF00003940747 bam 84.4 MB
EGAF00003940748 bam 238.8 MB
EGAF00003940749 bam 481.2 MB
EGAF00003940750 bam 685.2 MB
EGAF00003940751 bam 705.7 MB
EGAF00003940752 bam 391.7 MB
EGAF00003940753 bam 439.3 MB
EGAF00003940754 bam 410.5 MB
EGAF00003940755 bam 378.1 MB
EGAF00003940756 bam 460.4 MB
EGAF00003940757 bam 385.4 MB
51 Files (22.5 GB)