Collection of Genotypic and Ethnographic Information from Individuals of South African Ethnic Groups

• POA DUO:0000011 (version: 2019-01-07)population origins or ancestry research onlyThis data use permission indicates that use of the data is limited to the study of population origins or ancestry.
• RS DUO:0000012 (version: 2019-01-07)research specific restrictionsThis data use modifier indicates that use is limited to studies of a certain research type.
• RU DUO:0000014 (version: 2019-01-07)research use onlyThis data use limitation indicates that use is limited to research purposes (e.g., does not include its use in clinical care).
• NPUNCU DUO:0000018 (version: 2019-01-07)not for profit, non commercial use onlyThis data use modifier indicates that use of the data is limited to not-for-profit organizations and not-for-profit use, non-commercial use.
• COL DUO:0000020 (version: 2019-01-07)collaboration requiredThis data use modifier indicates that the requestor must agree to collaboration with the primary study investigator(s).
• IRB DUO:0000021 (version: 2019-01-07)ethics approval requiredThis data use modifier indicates that the requestor must provide documentation of local IRB/ERB approval.
• US DUO:0000026 (version: 2019-01-07)user specific restrictionThis data use modifier indicates that use is limited to use by approved users.
• PS DUO:0000027 (version: 2019-01-07)project specific restrictionThis data use modifier indicates that use is limited to use within an approved project.
• IS DUO:0000028 (version: 2019-01-07)institution specific restrictionThis data use modifier indicates that use is limited to use within an approved institution.

Qualified researchers can request access to the data by completing a Data Access Request form which will be evaluated by the Data Access Committee who wil consult with a community representative, the Health Research Ethics Committee of Stellenbosch and the Stellenbosch University Contracts Office.

Qualified researchers can request access to the data by completing a Data Access Request form which will be evaluated by the Data Access Committee who wil consult with a community representative, the Health Research Ethics Committee of Stellenbosch and the Stellenbosch University Contracts Office. Data access will be for approved use and will be governed by the provisions laid out in the associated informed consent of individual data subjects and of the Health Research Ethics Committee of Stellenbosch University. All investigators will have to sign a Data Transfer Agreement as stipulated by the Stellenbosch University Contracts Office. A qualified researcher refers to a senior investigator who is employed or legitimately affiliated with an academic, non-profit or government institution and who has a track record in the field. Researchers granted access to Project Data must feedback the results of their research to the Data Access Committee, after publication for distribution to the community representative. Access is conditional upon availability of data and on signed agreement by the researcher(s) and the responsible employing institution to abide by the policies and conditions related to publication, data ownership, data return, intellectual property rights, data disposal, ethical approval, confidentiality and commercialization referred herein.