Description:
Transfer of patient sequencing data requires a data transfer agreement to ensure that the regulations of the data protection law are fulfilled.
INFORM registry
INFORM – INdividualized Therapy FOr Relapsed Malignancies in Childhood
Commitment to data privacy protection for the usage of molecular data in academic research
I undertake to use the sequencial data of patient IXX-XXX, obtained in the context of the INFORM register, exclusively for academic research purposes, like stated in the patient informed consent. The research activities comprise examinations of molecular, genetic, immunologic and other characteristics of the tumor disease, as well as the development of new therapeutic options or diagnostic methods where appropriate.
I presented the research project „xxx“ to the heads of the GPOH study groups and/or National Coordinators concerned and to the INFORM Data Access Committee. Further, I received professional legal advice or a positive vote by the ethic committee, respectively.
Before publication, the INFORM coordinators will be asked for their approval. The manuscript will be presented to them for review at least 4 weeks before submission.
All applicable data protection laws are respected. Genetic data will be encoded and stored separately from clinical data. I ensure that these data at our institution are protected against access by any third parties. The data will not be passed on to unauthorized third parties. Equally, the codes necessary for re-identification will not be passed on to unauthorized third parties. No attempt is made to identify the respective patient via their genetic data. Future publications will not allow any conclusion regarding the person’s identity.
______________ ____________________ __________________________
Date Name Signature
___________________
Institutional stamp
Please send scan via email and send the original signed document by post to:
INFORM Trial Office, KiTZ Clinical Trial Unit / Ruth Witt, Im Neuenheimer Feld 130/3, 69120 Heidelberg, Germany
Neuroblastoma Study data access policy
Description:
Transfer of patient sequencing data requires a data transfer agreement to ensure that the regulations of the data protection law are fulfilled.
Policy:
“I undertake to use the sequencing data exclusively for academic research purposes, like stated in the patient informed consent. The research activities comprise examinations of molecular, genetic, immunologic and other characteristics of the tumor disease, as well as the development of new therapeutic options or diagnostic methods where appropriate.
I received professional legal advice or a positive vote by the ethic committee, respectively.
All applicable data protection laws are respected. Genetic data will be encoded and stored separately from clinical data. I ensure that these data at our institution are protected against access by any third parties. The data will not be passed on to unauthorized third parties. Equally, the codes necessary for re-identification will not be passed on to unauthorized third parties. No attempt is made to identify the respective patient via their genetic data. Future publications will not allow any conclusion regarding the person’s identity.”
____________ ____________________ __________________________
Date Name Signature
___________________
Institutional stamp
Please send scan via email and send the original signed document by post to:
Department Neuroblastoma Genomics, German Cancer Research Center, Im Neuenheimer Feld 280, 69120 Heidelberg, Germany
Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.
This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a
request.
If you already have access to these data files, please consult the
download documentation.
ID |
File Type |
Size |
Located in |
|
EGAF00004173744 |
fastq.gz |
4.5 GB |
|
|
EGAF00004173745 |
fastq.gz |
4.7 GB |
|
|
EGAF00004173746 |
fastq.gz |
4.5 GB |
|
|
EGAF00004173747 |
fastq.gz |
4.8 GB |
|
|
EGAF00004173748 |
fastq.gz |
3.9 GB |
|
|
EGAF00004173749 |
fastq.gz |
4.3 GB |
|
|
EGAF00004173750 |
fastq.gz |
3.5 GB |
|
|
EGAF00004173751 |
fastq.gz |
4.2 GB |
|
|
EGAF00004173752 |
fastq.gz |
3.1 GB |
|
|
EGAF00004173753 |
fastq.gz |
3.3 GB |
|
|
EGAF00004173754 |
fastq.gz |
3.1 GB |
|
|
EGAF00004173755 |
fastq.gz |
3.3 GB |
|
|
EGAF00004173756 |
fastq.gz |
4.5 GB |
|
|
EGAF00004173757 |
fastq.gz |
4.7 GB |
|
|
EGAF00004173758 |
fastq.gz |
4.4 GB |
|
|
EGAF00004173759 |
fastq.gz |
4.7 GB |
|
|
EGAF00004173760 |
fastq.gz |
5.0 GB |
|
|
EGAF00004173761 |
fastq.gz |
5.3 GB |
|
|
EGAF00004173762 |
fastq.gz |
5.1 GB |
|
|
EGAF00004173763 |
fastq.gz |
5.3 GB |
|
|
EGAF00004173764 |
fastq.gz |
4.6 GB |
|
|
EGAF00004173765 |
fastq.gz |
4.8 GB |
|
|
EGAF00004173766 |
fastq.gz |
4.7 GB |
|
|
EGAF00004173767 |
fastq.gz |
4.9 GB |
|
|
EGAF00004173768 |
fastq.gz |
4.7 GB |
|
|
EGAF00004173769 |
fastq.gz |
4.9 GB |
|
|
EGAF00004173770 |
fastq.gz |
4.7 GB |
|
|
EGAF00004173771 |
fastq.gz |
4.9 GB |
|
|
EGAF00004173772 |
fastq.gz |
5.1 GB |
|
|
EGAF00004173773 |
fastq.gz |
5.4 GB |
|
|
EGAF00004173774 |
fastq.gz |
5.0 GB |
|
|
EGAF00004173775 |
fastq.gz |
5.2 GB |
|
|
EGAF00004173776 |
fastq.gz |
3.9 GB |
|
|
EGAF00004173777 |
fastq.gz |
4.1 GB |
|
|
EGAF00004173778 |
fastq.gz |
3.9 GB |
|
|
EGAF00004173779 |
fastq.gz |
4.1 GB |
|
|
EGAF00004173780 |
fastq.gz |
5.4 GB |
|
|
EGAF00004173781 |
fastq.gz |
5.5 GB |
|
|
EGAF00004173782 |
fastq.gz |
5.3 GB |
|
|
EGAF00004173783 |
fastq.gz |
5.4 GB |
|
|
EGAF00004173784 |
fastq.gz |
4.9 GB |
|
|
EGAF00004173785 |
fastq.gz |
5.1 GB |
|
|
EGAF00004173786 |
fastq.gz |
4.8 GB |
|
|
EGAF00004173787 |
fastq.gz |
5.0 GB |
|
|
EGAF00004173788 |
fastq.gz |
4.8 GB |
|
|
EGAF00004173789 |
fastq.gz |
5.0 GB |
|
|
EGAF00004173790 |
fastq.gz |
5.0 GB |
|
|
EGAF00004173791 |
fastq.gz |
5.2 GB |
|
|
EGAF00004173792 |
fastq.gz |
4.1 GB |
|
|
EGAF00004173793 |
fastq.gz |
4.3 GB |
|
|
EGAF00004173794 |
fastq.gz |
4.2 GB |
|
|
EGAF00004173795 |
fastq.gz |
4.4 GB |
|
|
EGAF00004173796 |
fastq.gz |
3.5 GB |
|
|
EGAF00004173797 |
fastq.gz |
3.7 GB |
|
|
EGAF00004173798 |
fastq.gz |
3.5 GB |
|
|
EGAF00004173799 |
fastq.gz |
3.7 GB |
|
|
EGAF00004173800 |
fastq.gz |
3.6 GB |
|
|
EGAF00004173801 |
fastq.gz |
3.8 GB |
|
|
EGAF00004173802 |
fastq.gz |
3.7 GB |
|
|
EGAF00004173803 |
fastq.gz |
3.8 GB |
|
|
EGAF00004173804 |
fastq.gz |
4.4 GB |
|
|
EGAF00004173805 |
fastq.gz |
4.6 GB |
|
|
EGAF00004173806 |
fastq.gz |
4.3 GB |
|
|
EGAF00004173807 |
fastq.gz |
4.6 GB |
|
|
EGAF00004173808 |
fastq.gz |
3.9 GB |
|
|
EGAF00004173809 |
fastq.gz |
4.1 GB |
|
|
EGAF00004173810 |
fastq.gz |
4.0 GB |
|
|
EGAF00004173811 |
fastq.gz |
4.2 GB |
|
|
EGAF00004173812 |
fastq.gz |
3.7 GB |
|
|
EGAF00004173813 |
fastq.gz |
3.8 GB |
|
|
EGAF00004173814 |
fastq.gz |
3.7 GB |
|
|
EGAF00004173815 |
fastq.gz |
3.8 GB |
|
|
EGAF00004173816 |
fastq.gz |
4.3 GB |
|
|
EGAF00004173817 |
fastq.gz |
4.5 GB |
|
|
EGAF00004173818 |
fastq.gz |
4.3 GB |
|
|
EGAF00004173819 |
fastq.gz |
4.5 GB |
|
|
EGAF00004173820 |
fastq.gz |
5.3 GB |
|
|
EGAF00004173821 |
fastq.gz |
5.7 GB |
|
|
EGAF00004173822 |
fastq.gz |
4.4 GB |
|
|
EGAF00004173823 |
fastq.gz |
4.6 GB |
|
|
EGAF00004173824 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173825 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173826 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173827 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173828 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173829 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173830 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173831 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173832 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173833 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173834 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173835 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173836 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173837 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173838 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173839 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173840 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173841 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173842 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173843 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173844 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173845 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173846 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173847 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173848 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173849 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173850 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173851 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173852 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173853 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173854 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173855 |
fastq.gz |
1.9 GB |
|
|
EGAF00004173856 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173857 |
fastq.gz |
1.9 GB |
|
|
EGAF00004173858 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173859 |
fastq.gz |
1.9 GB |
|
|
EGAF00004173860 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173861 |
fastq.gz |
1.9 GB |
|
|
EGAF00004173862 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173863 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173864 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173865 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173866 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173867 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173868 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173869 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173870 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173871 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173872 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173873 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173874 |
fastq.gz |
5.3 GB |
|
|
EGAF00004173875 |
fastq.gz |
5.5 GB |
|
|
EGAF00004173876 |
fastq.gz |
5.2 GB |
|
|
EGAF00004173877 |
fastq.gz |
5.4 GB |
|
|
EGAF00004173878 |
fastq.gz |
1.3 GB |
|
|
EGAF00004173879 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173880 |
fastq.gz |
1.3 GB |
|
|
EGAF00004173881 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173882 |
fastq.gz |
1.3 GB |
|
|
EGAF00004173883 |
fastq.gz |
1.3 GB |
|
|
EGAF00004173884 |
fastq.gz |
1.3 GB |
|
|
EGAF00004173885 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173886 |
fastq.gz |
1.3 GB |
|
|
EGAF00004173887 |
fastq.gz |
1.3 GB |
|
|
EGAF00004173888 |
fastq.gz |
6.7 GB |
|
|
EGAF00004173889 |
fastq.gz |
7.1 GB |
|
|
EGAF00004173890 |
fastq.gz |
6.6 GB |
|
|
EGAF00004173891 |
fastq.gz |
7.0 GB |
|
|
EGAF00004173892 |
fastq.gz |
6.3 GB |
|
|
EGAF00004173893 |
fastq.gz |
6.7 GB |
|
|
EGAF00004173894 |
fastq.gz |
6.2 GB |
|
|
EGAF00004173895 |
fastq.gz |
6.5 GB |
|
|
EGAF00004173896 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173897 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173898 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173899 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173900 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173901 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173902 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173903 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173904 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173905 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173906 |
fastq.gz |
4.7 GB |
|
|
EGAF00004173907 |
fastq.gz |
5.0 GB |
|
|
EGAF00004173908 |
fastq.gz |
4.6 GB |
|
|
EGAF00004173909 |
fastq.gz |
5.0 GB |
|
|
EGAF00004173910 |
fastq.gz |
4.6 GB |
|
|
EGAF00004173911 |
fastq.gz |
4.9 GB |
|
|
EGAF00004173912 |
fastq.gz |
4.7 GB |
|
|
EGAF00004173913 |
fastq.gz |
5.0 GB |
|
|
EGAF00004173914 |
fastq.gz |
4.6 GB |
|
|
EGAF00004173915 |
fastq.gz |
4.9 GB |
|
|
EGAF00004173916 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173917 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173918 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173919 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173920 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173921 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173922 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173923 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173924 |
fastq.gz |
1.4 GB |
|
|
EGAF00004173925 |
fastq.gz |
1.5 GB |
|
|
EGAF00004173926 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173927 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173928 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173929 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173930 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173931 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173932 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173933 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173934 |
fastq.gz |
1.6 GB |
|
|
EGAF00004173935 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173936 |
fastq.gz |
8.1 GB |
|
|
EGAF00004173937 |
fastq.gz |
8.5 GB |
|
|
EGAF00004173938 |
fastq.gz |
9.8 GB |
|
|
EGAF00004173939 |
fastq.gz |
10.5 GB |
|
|
EGAF00004173940 |
fastq.gz |
6.0 GB |
|
|
EGAF00004173941 |
fastq.gz |
6.4 GB |
|
|
EGAF00004173942 |
fastq.gz |
5.8 GB |
|
|
EGAF00004173943 |
fastq.gz |
6.1 GB |
|
|
EGAF00004173944 |
fastq.gz |
5.5 GB |
|
|
EGAF00004173945 |
fastq.gz |
5.8 GB |
|
|
EGAF00004173946 |
fastq.gz |
5.3 GB |
|
|
EGAF00004173947 |
fastq.gz |
5.6 GB |
|
|
EGAF00004173948 |
fastq.gz |
8.6 GB |
|
|
EGAF00004173949 |
fastq.gz |
9.1 GB |
|
|
EGAF00004173950 |
fastq.gz |
7.0 GB |
|
|
EGAF00004173951 |
fastq.gz |
7.5 GB |
|
|
EGAF00004173952 |
fastq.gz |
7.0 GB |
|
|
EGAF00004173953 |
fastq.gz |
7.4 GB |
|
|
EGAF00004173954 |
fastq.gz |
10.6 GB |
|
|
EGAF00004173955 |
fastq.gz |
11.1 GB |
|
|
EGAF00004173956 |
fastq.gz |
2.2 GB |
|
|
EGAF00004173957 |
fastq.gz |
2.3 GB |
|
|
EGAF00004173958 |
fastq.gz |
2.1 GB |
|
|
EGAF00004173959 |
fastq.gz |
2.2 GB |
|
|
EGAF00004173960 |
fastq.gz |
1.9 GB |
|
|
EGAF00004173961 |
fastq.gz |
2.0 GB |
|
|
EGAF00004173962 |
fastq.gz |
2.2 GB |
|
|
EGAF00004173963 |
fastq.gz |
2.3 GB |
|
|
EGAF00004173964 |
fastq.gz |
2.1 GB |
|
|
EGAF00004173965 |
fastq.gz |
2.3 GB |
|
|
EGAF00004173966 |
fastq.gz |
1.7 GB |
|
|
EGAF00004173967 |
fastq.gz |
1.8 GB |
|
|
EGAF00004173968 |
fastq.gz |
2.5 GB |
|
|
EGAF00004173969 |
fastq.gz |
2.3 GB |
|
|
EGAF00004173970 |
fastq.gz |
2.0 GB |
|
|
EGAF00004173971 |
fastq.gz |
2.1 GB |
|
|
EGAF00004173972 |
fastq.gz |
2.6 GB |
|
|
EGAF00004173973 |
fastq.gz |
2.6 GB |
|
|
EGAF00004173974 |
fastq.gz |
5.8 GB |
|
|
EGAF00004173975 |
fastq.gz |
6.2 GB |
|
|
EGAF00004173976 |
fastq.gz |
9.7 GB |
|
|
EGAF00004173977 |
fastq.gz |
10.9 GB |
|
|
EGAF00004173978 |
fastq.gz |
9.4 GB |
|
|
EGAF00004173979 |
fastq.gz |
10.5 GB |
|
|
EGAF00004173980 |
fastq.gz |
9.2 GB |
|
|
EGAF00004173981 |
fastq.gz |
10.4 GB |
|
|
EGAF00004173982 |
fastq.gz |
9.8 GB |
|
|
EGAF00004173983 |
fastq.gz |
11.1 GB |
|
|
EGAF00004173984 |
fastq.gz |
9.3 GB |
|
|
EGAF00004173985 |
fastq.gz |
9.6 GB |
|
|
EGAF00004173986 |
fastq.gz |
8.5 GB |
|
|
EGAF00004173987 |
fastq.gz |
8.9 GB |
|
|
EGAF00004173988 |
fastq.gz |
19.1 GB |
|
|
EGAF00004173989 |
fastq.gz |
20.5 GB |
|
|
EGAF00004173990 |
fastq.gz |
8.8 GB |
|
|
EGAF00004173991 |
fastq.gz |
9.0 GB |
|
|
EGAF00004173992 |
fastq.gz |
9.1 GB |
|
|
EGAF00004173993 |
fastq.gz |
9.5 GB |
|
|
EGAF00004173994 |
fastq.gz |
21.8 GB |
|
|
EGAF00004173995 |
fastq.gz |
21.2 GB |
|
|
EGAF00004173996 |
fastq.gz |
5.1 GB |
|
|
EGAF00004173997 |
fastq.gz |
5.5 GB |
|
|
EGAF00004173998 |
fastq.gz |
9.5 GB |
|
|
EGAF00004173999 |
fastq.gz |
10.1 GB |
|
|
EGAF00004174000 |
fastq.gz |
9.3 GB |
|
|
EGAF00004174001 |
fastq.gz |
10.1 GB |
|
|
EGAF00004174002 |
fastq.gz |
7.4 GB |
|
|
EGAF00004174003 |
fastq.gz |
8.1 GB |
|
|
EGAF00004174004 |
fastq.gz |
7.8 GB |
|
|
EGAF00004174005 |
fastq.gz |
8.9 GB |
|
|
EGAF00004174006 |
fastq.gz |
18.6 GB |
|
|
EGAF00004174007 |
fastq.gz |
21.5 GB |
|
|
EGAF00004174008 |
fastq.gz |
20.4 GB |
|
|
EGAF00004174009 |
fastq.gz |
22.6 GB |
|
|
EGAF00004174010 |
fastq.gz |
20.9 GB |
|
|
EGAF00004174011 |
fastq.gz |
23.0 GB |
|
|
EGAF00004174012 |
fastq.gz |
19.7 GB |
|
|
EGAF00004174013 |
fastq.gz |
23.3 GB |
|
|
EGAF00004174014 |
fastq.gz |
19.5 GB |
|
|
EGAF00004174015 |
fastq.gz |
22.2 GB |
|
|
EGAF00004174016 |
fastq.gz |
20.2 GB |
|
|
EGAF00004174017 |
fastq.gz |
23.0 GB |
|
|
EGAF00004174018 |
fastq.gz |
3.9 GB |
|
|
EGAF00004174019 |
fastq.gz |
3.7 GB |
|
|
EGAF00004174020 |
fastq.gz |
4.8 GB |
|
|
EGAF00004174021 |
fastq.gz |
4.6 GB |
|
|
EGAF00004174022 |
fastq.gz |
4.1 GB |
|
|
EGAF00004174023 |
fastq.gz |
3.9 GB |
|
|
EGAF00004174024 |
fastq.gz |
4.8 GB |
|
|
EGAF00004174025 |
fastq.gz |
4.7 GB |
|
|
EGAF00004174026 |
fastq.gz |
4.6 GB |
|
|
EGAF00004174027 |
fastq.gz |
4.4 GB |
|
|
EGAF00004174028 |
fastq.gz |
4.6 GB |
|
|
EGAF00004174029 |
fastq.gz |
4.4 GB |
|
|
EGAF00004174030 |
fastq.gz |
5.4 GB |
|
|
EGAF00004174031 |
fastq.gz |
5.2 GB |
|
|
EGAF00004174032 |
fastq.gz |
4.5 GB |
|
|
EGAF00004174033 |
fastq.gz |
4.3 GB |
|
|
290 Files (1.5 TB)
|