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Whole Exome Sequences IberianRoma

Dataset with 81 whole exome sequences from Iberian Roma samples.

Request Access

DUO:0000011
version: 2019-01-07

population origins or ancestry research only

This data use permission indicates that use of the data is limited to the study of population origins or ancestry.

DUO:0000016
version: 2019-01-07

genetic studies only

This data use modifier indicates that use is limited to genetic studies only (i.e., studies that include genotype research alone or both genotype and phenotype research, but not phenotype research exclusively)

DUO:0000018
version: 2019-01-07

not for profit, non commercial use only

This data use modifier indicates that use of the data is limited to not-for-profit organizations and not-for-profit use, non-commercial use.

DUO:0000021
version: 2019-01-07

ethics approval required

This data use modifier indicates that the requestor must provide documentation of local IRB/ERB approval.

DUO:0000026
version: 2019-01-07

user specific restriction

This data use modifier indicates that use is limited to use by approved users.

DUO:0000027
version: 2019-01-07

project specific restriction

This data use modifier indicates that use is limited to use within an approved project.

DUO:0000028
version: 2019-01-07

institution specific restriction

This data use modifier indicates that use is limited to use within an approved institution.

Data access policy for whole exome sequences and genome-wide array data of Iberian Roma samples.

DATA ACCESS AGREEMENT These terms and conditions govern access to the managed access datasets to which the User Institution has requested access. The User Institution agrees to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom Dr.David Comas grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: Dr.David Comas and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. User Institution(s): The Institution that has requested access to the Data. David Comas 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. 6. The User Institution agrees that the Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. The User Institution agrees to follow the Fort Lauderdale Guidelines (http://www.wellcome.ac.uk/stellent/groups/corporatesite/@policy_communications/documents/web_document/wtd003207.pdf ) and the Toronto Statement (http://www.nature.com/nature/journal/v461/n7261/full/461168a.html). This includes but is not limited to recognising the contribution of the Data Producers and including a proper acknowledgement in all reports or publications resulting from the use of these Data. 8. The User Institution agrees to follow the Publication Policy in Appendix III. This includes respecting the moratorium period for the Data Producers to publish the first peer-reviewed report describing and analysing these Data. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and to follow the U.S. National Institutes of Health Best Practices for the Licensing of Genomic Inventions (2005) (https://www.icgc.org/files/daco/NIH_BestPracticesLicensingGenomicInventions_2005_en.pdf ) in conformity with the Organisation for Economic Co-operation and Development Guidelines for the Licensing of the Genetic Inventions (2006) (http://www.oecd.org/science/biotech/36198812.pdf ). 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify Dr.David Comas within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify Dr.David Comas prior to any significant changes to the protocol for the Project. 14. The User Institution will notify Dr.David Comas as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. Dr.David Comas may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary for the Data Producers to alter the terms of this agreement from time to time. As an example, this may include specific provisions relating to the Data required by Data Producers other than Dr.David Comas. In the event that changes are required, the Data Producers or their appointed agent will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. 19. This agreement (and any dispute, controversy, proceedings or claim of whatever nature arising out of this agreement or its formation) shall be construed, interpreted and governed by the laws of Spain.

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001004599 Other

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID File Type Size Quality Report
Located in
EGAF00004257630 fastq.gz 1.6 GB Report
EGAF00004257631 fastq.gz 1.6 GB Report
EGAF00004257632 fastq.gz 1.5 GB Report
EGAF00004257633 fastq.gz 1.6 GB Report
EGAF00004257634 fastq.gz 2.0 GB Report
EGAF00004257635 fastq.gz 2.0 GB Report
EGAF00004257636 fastq.gz 1.6 GB Report
EGAF00004257637 fastq.gz 1.7 GB Report
EGAF00004257638 fastq.gz 1.8 GB Report
EGAF00004257639 fastq.gz 1.9 GB Report
EGAF00004257640 fastq.gz 1.6 GB Report
EGAF00004257641 fastq.gz 1.6 GB Report
EGAF00004257642 fastq.gz 1.7 GB Report
EGAF00004257643 fastq.gz 1.7 GB Report
EGAF00004257644 fastq.gz 1.8 GB Report
EGAF00004257645 fastq.gz 1.8 GB Report
EGAF00004257646 fastq.gz 1.9 GB Report
EGAF00004257647 fastq.gz 2.0 GB Report
EGAF00004257648 fastq.gz 1.7 GB Report
EGAF00004257649 fastq.gz 1.8 GB Report
EGAF00004257650 fastq.gz 1.7 GB Report
EGAF00004257651 fastq.gz 1.7 GB Report
EGAF00004257652 fastq.gz 1.7 GB Report
EGAF00004257653 fastq.gz 1.7 GB Report
EGAF00004257654 fastq.gz 1.8 GB Report
EGAF00004257655 fastq.gz 1.9 GB Report
EGAF00004257656 fastq.gz 2.0 GB Report
EGAF00004257657 fastq.gz 2.0 GB Report
EGAF00004257658 fastq.gz 1.9 GB Report
EGAF00004257659 fastq.gz 1.9 GB Report
EGAF00004257660 fastq.gz 1.7 GB Report
EGAF00004257661 fastq.gz 1.7 GB Report
EGAF00004257662 fastq.gz 1.6 GB Report
EGAF00004257663 fastq.gz 1.6 GB Report
EGAF00004257664 fastq.gz 2.2 GB Report
EGAF00004257665 fastq.gz 2.3 GB Report
EGAF00004257666 fastq.gz 1.6 GB Report
EGAF00004257667 fastq.gz 1.7 GB Report
EGAF00004257668 fastq.gz 1.8 GB Report
EGAF00004257669 fastq.gz 1.9 GB Report
EGAF00004257670 fastq.gz 2.1 GB Report
EGAF00004257671 fastq.gz 2.2 GB Report
EGAF00004257672 fastq.gz 1.6 GB Report
EGAF00004257673 fastq.gz 1.7 GB Report
EGAF00004257674 fastq.gz 1.6 GB Report
EGAF00004257675 fastq.gz 1.7 GB Report
EGAF00004257676 fastq.gz 1.7 GB Report
EGAF00004257677 fastq.gz 1.8 GB Report
EGAF00004257678 fastq.gz 1.6 GB Report
EGAF00004257679 fastq.gz 1.7 GB Report
EGAF00004257680 fastq.gz 1.6 GB Report
EGAF00004257681 fastq.gz 1.6 GB Report
EGAF00004257682 fastq.gz 1.5 GB Report
EGAF00004257683 fastq.gz 1.6 GB Report
EGAF00004257684 fastq.gz 1.6 GB Report
EGAF00004257685 fastq.gz 1.7 GB Report
EGAF00004257686 fastq.gz 1.9 GB Report
EGAF00004257687 fastq.gz 1.9 GB Report
EGAF00004257688 fastq.gz 1.6 GB Report
EGAF00004257689 fastq.gz 1.6 GB Report
EGAF00004257690 fastq.gz 2.0 GB Report
EGAF00004257691 fastq.gz 2.0 GB Report
EGAF00004257692 fastq.gz 1.7 GB Report
EGAF00004257693 fastq.gz 1.7 GB Report
EGAF00004257694 fastq.gz 1.8 GB Report
EGAF00004257695 fastq.gz 1.9 GB Report
EGAF00004257696 fastq.gz 2.0 GB Report
EGAF00004257697 fastq.gz 2.0 GB Report
EGAF00004257698 fastq.gz 1.9 GB Report
EGAF00004257699 fastq.gz 2.0 GB Report
EGAF00004257700 fastq.gz 1.5 GB Report
EGAF00004257701 fastq.gz 1.6 GB Report
EGAF00004257702 fastq.gz 1.6 GB Report
EGAF00004257703 fastq.gz 1.6 GB Report
EGAF00004257704 fastq.gz 1.7 GB Report
EGAF00004257705 fastq.gz 1.8 GB Report
EGAF00004257706 fastq.gz 1.8 GB Report
EGAF00004257707 fastq.gz 1.8 GB Report
EGAF00004257708 fastq.gz 1.6 GB Report
EGAF00004257709 fastq.gz 1.6 GB Report
EGAF00004257710 fastq.gz 1.8 GB Report
EGAF00004257711 fastq.gz 1.9 GB Report
EGAF00004257712 fastq.gz 1.9 GB Report
EGAF00004257713 fastq.gz 2.0 GB Report
EGAF00004257714 fastq.gz 2.0 GB Report
EGAF00004257715 fastq.gz 2.1 GB Report
EGAF00004257716 fastq.gz 1.7 GB Report
EGAF00004257717 fastq.gz 1.8 GB Report
EGAF00004257718 fastq.gz 1.6 GB Report
EGAF00004257719 fastq.gz 1.6 GB Report
EGAF00004257720 fastq.gz 1.9 GB Report
EGAF00004257721 fastq.gz 1.9 GB Report
EGAF00004257722 fastq.gz 1.5 GB Report
EGAF00004257723 fastq.gz 1.6 GB Report
EGAF00004257724 fastq.gz 1.6 GB Report
EGAF00004257725 fastq.gz 1.6 GB Report
EGAF00004257726 fastq.gz 1.7 GB Report
EGAF00004257727 fastq.gz 1.8 GB Report
EGAF00004257728 fastq.gz 1.6 GB Report
EGAF00004257729 fastq.gz 1.6 GB Report
EGAF00004257730 fastq.gz 1.8 GB Report
EGAF00004257731 fastq.gz 1.9 GB Report
EGAF00004257732 fastq.gz 1.8 GB Report
EGAF00004257733 fastq.gz 1.8 GB Report
EGAF00004257734 fastq.gz 1.9 GB Report
EGAF00004257735 fastq.gz 2.0 GB Report
EGAF00004257736 fastq.gz 1.6 GB Report
EGAF00004257737 fastq.gz 1.6 GB Report
EGAF00004257738 fastq.gz 1.8 GB Report
EGAF00004257739 fastq.gz 1.8 GB Report
EGAF00004257740 fastq.gz 1.6 GB Report
EGAF00004257741 fastq.gz 1.6 GB Report
EGAF00004257742 fastq.gz 1.7 GB Report
EGAF00004257743 fastq.gz 1.7 GB Report
EGAF00004257744 fastq.gz 2.2 GB Report
EGAF00004257745 fastq.gz 2.3 GB Report
EGAF00004257746 fastq.gz 1.8 GB Report
EGAF00004257747 fastq.gz 1.8 GB Report
EGAF00004257748 fastq.gz 1.8 GB Report
EGAF00004257749 fastq.gz 1.8 GB Report
EGAF00004257750 fastq.gz 2.0 GB Report
EGAF00004257751 fastq.gz 2.0 GB Report
EGAF00004257752 fastq.gz 1.9 GB Report
EGAF00004257753 fastq.gz 1.9 GB Report
EGAF00004257754 fastq.gz 2.1 GB Report
EGAF00004257755 fastq.gz 2.1 GB Report
EGAF00004257756 fastq.gz 2.1 GB Report
EGAF00004257757 fastq.gz 2.1 GB Report
EGAF00004257758 fastq.gz 1.8 GB Report
EGAF00004257759 fastq.gz 1.9 GB Report
EGAF00004257760 fastq.gz 1.7 GB Report
EGAF00004257761 fastq.gz 1.8 GB Report
EGAF00004257762 fastq.gz 1.6 GB Report
EGAF00004257763 fastq.gz 1.6 GB Report
EGAF00004257764 fastq.gz 1.9 GB Report
EGAF00004257765 fastq.gz 1.9 GB Report
EGAF00004257766 fastq.gz 2.1 GB Report
EGAF00004257767 fastq.gz 2.1 GB Report
EGAF00004257768 fastq.gz 1.8 GB Report
EGAF00004257769 fastq.gz 1.8 GB Report
EGAF00004257770 fastq.gz 1.8 GB Report
EGAF00004257771 fastq.gz 1.8 GB Report
EGAF00004257772 fastq.gz 1.8 GB Report
EGAF00004257773 fastq.gz 1.9 GB Report
EGAF00004257774 fastq.gz 1.8 GB Report
EGAF00004257775 fastq.gz 1.8 GB Report
EGAF00004257776 fastq.gz 1.4 GB Report
EGAF00004257777 fastq.gz 1.5 GB Report
EGAF00004257778 fastq.gz 1.6 GB Report
EGAF00004257779 fastq.gz 1.6 GB Report
EGAF00004257780 fastq.gz 1.8 GB Report
EGAF00004257781 fastq.gz 1.8 GB Report
EGAF00004257782 fastq.gz 1.6 GB Report
EGAF00004257783 fastq.gz 1.6 GB Report
EGAF00004257784 fastq.gz 1.7 GB Report
EGAF00004257785 fastq.gz 1.7 GB Report
EGAF00004257786 fastq.gz 1.6 GB Report
EGAF00004257787 fastq.gz 1.6 GB Report
EGAF00004257788 fastq.gz 1.8 GB Report
EGAF00004257789 fastq.gz 1.8 GB Report
EGAF00004257790 fastq.gz 1.4 GB Report
EGAF00004257791 fastq.gz 1.5 GB Report
162 Files (287.9 GB)