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RNA-sequencing of meningiomas for integrative molecular classification.

RNA-sequencing of meningiomas for integrative molecular classification.

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MacFeeters-Hamilton Neuro-Oncology Center Data Access Committee

to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom MacFeeters-Hamilton Neuro-Oncology Center (MHNOC) grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: MHNOC and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. User Institution(s): The Institution that has requested access to the Data. MHNOC: MacFeeters-Hamilton Neuro-Oncology Center, 101 College Street, 14th floor, Room 601, M5G1L7, Toronto, Canada 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. 6. The User Institution agrees that the Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. The User Institution agrees to follow the Fort Lauderdale Guidelines (http://www.wellcome.ac.uk/stellent/groups/corporatesite/@policy_communications/documents/web_document/wtd003207.pdf ) and the Toronto Statement (http://www.nature.com/nature/journal/v461/n7261/full/461168a.html). This includes but is not limited to recognising the contribution of the Data Producers and including a proper acknowledgement in all reports or publications resulting from the use of these Data. 8. The User Institution agrees to follow the Publication Policy in Appendix III. This includes respecting the moratorium period for the Data Producers to publish the first peer-reviewed report describing and analysing these Data. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and to follow the U.S. National Institutes of Health Best Practices for the Licensing of Genomic Inventions (2005) (https://www.icgc.org/files/daco/NIH_BestPracticesLicensingGenomicInventions_2005_en.pdf ) in conformity with the Organisation for Economic Co-operation and Development Guidelines for the Licensing of the Genetic Inventions (2006) (http://www.oecd.org/science/biotech/36198812.pdf ). 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify MHNOC within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify MHNOC prior to any significant changes to the protocol for the Project. 14. The User Institution will notify MHNOC as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. MHNOC may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary for the Data Producers to alter the terms of this agreement from time to time. As an example, this may include specific provisions relating to the Data required by Data Producers other than MHNOC. In the event that changes are required, the Data Producers or their appointed agent will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. Agreed for User Institution Signature: Name: Title: Date: Principal Investigator I confirm that I have read and understood this Agreement. Signature: Name: Title: Date: Agreed for MHNOC Signature: Name: Title: Date: APPENDIX I – DATASET DETAILS APPENDIX II ––PROJECT DETAILS APPENDIX III –– PUBLICATION POLICY APPENDIX I – DATASET DETAILS (to be completed by the data producer before passing to applicant) Dataset reference (EGA Study ID and Dataset Details) Name of project that created the dataset Names of other data producers/collaborators Specific limitations on areas of research Minimum protection measures required File access: Data can be held in unencrypted files on an institutional compute system, with Unix user group read/write access for one or more appropriate groups but not Unix world read/write access behind a secure firewall. Laptops holding these data should have password protected logins and screenlocks (set to lock after 5 min of inactivity). If held on USB keys or other portable hard drives, the data must be encrypted. APPENDIX II – PROJECT DETAILS (to be completed by the Requestor) Details of dataset requested i.e., EGA Study and Dataset Accession Number Brief abstract of the Project in which the Data will be used (500 words max) All Individuals who the User Institution to be named as registered users Name of Registered User Email Job Title Supervisor* All Individuals that should have an account created at the EGA Name of Registered User Email Job Title APPENDIX III – PUBLICATION POLICY MHNOC intend to publish the results of their analysis of this dataset and do not consider its deposition into public databases to be the equivalent of such publications. MHNOC anticipate that the dataset could be useful to other qualified researchers for a variety of purposes. However, some areas of work are subject to a publication moratorium. The publication moratorium covers any publications (including oral communications) that describe the use of the dataset. For research papers, submission for publication should not occur until 12 months after these data were first made available on the relevant hosting database, unless MHNOC has provided written consent to earlier submission. In any publications based on these data, please describe how the data can be accessed, including the name of the hosting database (e.g., The European Genome-phenome Archive at the European Bioinformatics Institute) and its accession numbers (e.g., EGAS00000000029), and acknowledge its use in a form agreed by the User Institution with MHNOC.

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001004982 Other

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID File Type Size Located in
EGAF00005179186 fastq.gz 7.0 GB
EGAF00005179187 fastq.gz 7.1 GB
EGAF00005179188 fastq.gz 8.1 GB
EGAF00005179189 fastq.gz 8.3 GB
EGAF00005179190 fastq.gz 7.1 GB
EGAF00005179191 fastq.gz 7.4 GB
EGAF00005179192 fastq.gz 8.4 GB
EGAF00005179193 fastq.gz 8.6 GB
EGAF00005179194 fastq.gz 9.0 GB
EGAF00005179195 fastq.gz 9.2 GB
EGAF00005179196 fastq.gz 7.8 GB
EGAF00005179197 fastq.gz 7.8 GB
EGAF00005179198 fastq.gz 8.5 GB
EGAF00005179199 fastq.gz 8.5 GB
EGAF00005179200 fastq.gz 7.8 GB
EGAF00005179201 fastq.gz 8.3 GB
EGAF00005179202 fastq.gz 7.1 GB
EGAF00005179203 fastq.gz 7.2 GB
EGAF00005179204 fastq.gz 7.1 GB
EGAF00005179205 fastq.gz 7.3 GB
EGAF00005179206 fastq.gz 9.5 GB
EGAF00005179207 fastq.gz 9.7 GB
EGAF00005179208 fastq.gz 6.9 GB
EGAF00005179209 fastq.gz 6.9 GB
EGAF00005179210 fastq.gz 8.0 GB
EGAF00005179211 fastq.gz 8.0 GB
EGAF00005179212 fastq.gz 8.8 GB
EGAF00005179213 fastq.gz 9.0 GB
EGAF00005179214 fastq.gz 8.0 GB
EGAF00005179215 fastq.gz 8.1 GB
EGAF00005179216 fastq.gz 7.5 GB
EGAF00005179217 fastq.gz 7.7 GB
EGAF00005179218 fastq.gz 8.8 GB
EGAF00005179219 fastq.gz 9.1 GB
EGAF00005179220 fastq.gz 8.4 GB
EGAF00005179221 fastq.gz 8.8 GB
EGAF00005179222 fastq.gz 11.0 GB
EGAF00005179223 fastq.gz 11.5 GB
EGAF00005179224 fastq.gz 7.3 GB
EGAF00005179225 fastq.gz 7.4 GB
EGAF00005179226 fastq.gz 8.6 GB
EGAF00005179227 fastq.gz 8.6 GB
EGAF00005179228 fastq.gz 7.5 GB
EGAF00005179229 fastq.gz 7.7 GB
EGAF00005179230 fastq.gz 7.0 GB
EGAF00005179231 fastq.gz 7.2 GB
EGAF00005179232 fastq.gz 6.3 GB
EGAF00005179233 fastq.gz 6.5 GB
EGAF00005179234 fastq.gz 6.8 GB
EGAF00005179235 fastq.gz 6.9 GB
EGAF00005179236 fastq.gz 6.5 GB
EGAF00005179237 fastq.gz 6.8 GB
EGAF00005179238 fastq.gz 7.5 GB
EGAF00005179239 fastq.gz 7.8 GB
EGAF00005179240 fastq.gz 7.7 GB
EGAF00005179241 fastq.gz 8.0 GB
EGAF00005179242 fastq.gz 9.3 GB
EGAF00005179243 fastq.gz 9.3 GB
EGAF00005179244 fastq.gz 6.0 GB
EGAF00005179245 fastq.gz 6.2 GB
EGAF00005179246 fastq.gz 7.8 GB
EGAF00005179247 fastq.gz 8.1 GB
EGAF00005179248 fastq.gz 8.8 GB
EGAF00005179249 fastq.gz 9.1 GB
EGAF00005179250 fastq.gz 9.8 GB
EGAF00005179251 fastq.gz 10.0 GB
EGAF00005179252 fastq.gz 8.5 GB
EGAF00005179253 fastq.gz 8.2 GB
EGAF00005179254 fastq.gz 8.6 GB
EGAF00005179255 fastq.gz 8.8 GB
EGAF00005179256 fastq.gz 9.1 GB
EGAF00005179257 fastq.gz 9.2 GB
EGAF00005179258 fastq.gz 8.8 GB
EGAF00005179259 fastq.gz 8.8 GB
EGAF00005179260 fastq.gz 7.6 GB
EGAF00005179261 fastq.gz 7.9 GB
EGAF00005179262 fastq.gz 7.4 GB
EGAF00005179263 fastq.gz 7.5 GB
EGAF00005179264 fastq.gz 10.4 GB
EGAF00005179265 fastq.gz 10.5 GB
EGAF00005179266 fastq.gz 6.2 GB
EGAF00005179267 fastq.gz 6.4 GB
EGAF00005179268 fastq.gz 6.4 GB
EGAF00005179269 fastq.gz 6.5 GB
EGAF00005179270 fastq.gz 8.8 GB
EGAF00005179271 fastq.gz 8.9 GB
EGAF00005179272 fastq.gz 7.3 GB
EGAF00005179273 fastq.gz 7.6 GB
EGAF00005179274 fastq.gz 8.7 GB
EGAF00005179275 fastq.gz 8.8 GB
EGAF00005179276 fastq.gz 8.1 GB
EGAF00005179277 fastq.gz 8.2 GB
EGAF00005179278 fastq.gz 6.7 GB
EGAF00005179279 fastq.gz 7.0 GB
EGAF00005179280 fastq.gz 8.1 GB
EGAF00005179281 fastq.gz 8.2 GB
EGAF00005179282 fastq.gz 7.0 GB
EGAF00005179283 fastq.gz 7.2 GB
EGAF00005179284 fastq.gz 5.8 GB
EGAF00005179285 fastq.gz 6.0 GB
EGAF00005179286 fastq.gz 7.3 GB
EGAF00005179287 fastq.gz 7.4 GB
EGAF00005179288 fastq.gz 7.1 GB
EGAF00005179289 fastq.gz 7.4 GB
EGAF00005179290 fastq.gz 6.5 GB
EGAF00005179291 fastq.gz 6.7 GB
EGAF00005179292 fastq.gz 7.7 GB
EGAF00005179293 fastq.gz 7.7 GB
EGAF00005179294 fastq.gz 7.8 GB
EGAF00005179295 fastq.gz 8.0 GB
EGAF00005179296 fastq.gz 8.7 GB
EGAF00005179297 fastq.gz 9.0 GB
EGAF00005179298 fastq.gz 7.0 GB
EGAF00005179299 fastq.gz 7.1 GB
EGAF00005179300 fastq.gz 8.7 GB
EGAF00005179301 fastq.gz 8.8 GB
EGAF00005179302 fastq.gz 8.1 GB
EGAF00005179303 fastq.gz 8.5 GB
EGAF00005179304 fastq.gz 7.1 GB
EGAF00005179305 fastq.gz 7.4 GB
EGAF00005179306 fastq.gz 7.5 GB
EGAF00005179307 fastq.gz 7.7 GB
EGAF00005179308 fastq.gz 7.5 GB
EGAF00005179309 fastq.gz 7.7 GB
EGAF00005179310 fastq.gz 7.5 GB
EGAF00005179311 fastq.gz 7.8 GB
EGAF00005179312 fastq.gz 8.0 GB
EGAF00005179313 fastq.gz 8.2 GB
EGAF00005179314 fastq.gz 7.8 GB
EGAF00005179315 fastq.gz 8.2 GB
EGAF00005179316 fastq.gz 9.4 GB
EGAF00005179317 fastq.gz 9.7 GB
EGAF00005179318 fastq.gz 7.3 GB
EGAF00005179319 fastq.gz 7.5 GB
EGAF00005179320 fastq.gz 7.9 GB
EGAF00005179321 fastq.gz 8.1 GB
EGAF00005179322 fastq.gz 8.6 GB
EGAF00005179323 fastq.gz 8.6 GB
EGAF00005179324 fastq.gz 8.3 GB
EGAF00005179325 fastq.gz 8.6 GB
EGAF00005179326 fastq.gz 7.6 GB
EGAF00005179327 fastq.gz 7.7 GB
EGAF00005179328 fastq.gz 7.9 GB
EGAF00005179329 fastq.gz 8.1 GB
EGAF00005179330 fastq.gz 8.8 GB
EGAF00005179331 fastq.gz 9.0 GB
EGAF00005179332 fastq.gz 8.9 GB
EGAF00005179333 fastq.gz 9.1 GB
EGAF00005179334 fastq.gz 9.1 GB
EGAF00005179335 fastq.gz 9.1 GB
EGAF00005179336 fastq.gz 9.0 GB
EGAF00005179337 fastq.gz 9.0 GB
EGAF00005179338 fastq.gz 8.1 GB
EGAF00005179339 fastq.gz 8.0 GB
EGAF00005179340 fastq.gz 8.2 GB
EGAF00005179341 fastq.gz 8.5 GB
EGAF00005179342 fastq.gz 7.6 GB
EGAF00005179343 fastq.gz 7.9 GB
EGAF00005179344 fastq.gz 7.3 GB
EGAF00005179345 fastq.gz 7.5 GB
EGAF00005179346 fastq.gz 8.0 GB
EGAF00005179347 fastq.gz 8.0 GB
EGAF00005179348 fastq.gz 7.5 GB
EGAF00005179349 fastq.gz 7.5 GB
EGAF00005179350 fastq.gz 8.0 GB
EGAF00005179351 fastq.gz 8.1 GB
EGAF00005179352 fastq.gz 9.6 GB
EGAF00005179353 fastq.gz 9.8 GB
EGAF00005179354 fastq.gz 8.0 GB
EGAF00005179355 fastq.gz 8.1 GB
EGAF00005179356 fastq.gz 7.7 GB
EGAF00005179357 fastq.gz 7.7 GB
EGAF00005179358 fastq.gz 8.0 GB
EGAF00005179359 fastq.gz 8.3 GB
EGAF00005179360 fastq.gz 8.4 GB
EGAF00005179361 fastq.gz 8.5 GB
EGAF00005179362 fastq.gz 8.8 GB
EGAF00005179363 fastq.gz 8.9 GB
EGAF00005179364 fastq.gz 8.4 GB
EGAF00005179365 fastq.gz 8.6 GB
EGAF00005179366 fastq.gz 7.5 GB
EGAF00005179367 fastq.gz 7.8 GB
EGAF00005179368 fastq.gz 7.8 GB
EGAF00005179369 fastq.gz 8.0 GB
EGAF00005179370 fastq.gz 7.6 GB
EGAF00005179371 fastq.gz 7.9 GB
EGAF00005179372 fastq.gz 7.8 GB
EGAF00005179373 fastq.gz 8.1 GB
EGAF00005179374 fastq.gz 8.2 GB
EGAF00005179375 fastq.gz 8.6 GB
EGAF00005179376 fastq.gz 8.1 GB
EGAF00005179377 fastq.gz 8.4 GB
EGAF00005179378 fastq.gz 7.8 GB
EGAF00005179379 fastq.gz 7.9 GB
EGAF00005179380 fastq.gz 8.1 GB
EGAF00005179381 fastq.gz 8.1 GB
EGAF00005179382 fastq.gz 7.6 GB
EGAF00005179383 fastq.gz 7.8 GB
EGAF00005179384 fastq.gz 8.3 GB
EGAF00005179385 fastq.gz 8.5 GB
EGAF00005179386 fastq.gz 8.4 GB
EGAF00005179387 fastq.gz 8.5 GB
EGAF00005179388 fastq.gz 9.5 GB
EGAF00005179389 fastq.gz 9.8 GB
EGAF00005179390 fastq.gz 9.6 GB
EGAF00005179391 fastq.gz 9.9 GB
EGAF00005179392 fastq.gz 9.1 GB
EGAF00005179393 fastq.gz 9.2 GB
EGAF00005179394 fastq.gz 6.4 GB
EGAF00005179395 fastq.gz 6.6 GB
EGAF00005179396 fastq.gz 8.3 GB
EGAF00005179397 fastq.gz 8.5 GB
EGAF00005179398 fastq.gz 7.7 GB
EGAF00005179399 fastq.gz 8.0 GB
EGAF00005179400 fastq.gz 9.7 GB
EGAF00005179401 fastq.gz 9.8 GB
EGAF00005179402 fastq.gz 7.8 GB
EGAF00005179403 fastq.gz 7.9 GB
EGAF00005179404 fastq.gz 9.3 GB
EGAF00005179405 fastq.gz 9.4 GB
EGAF00005179406 fastq.gz 6.1 GB
EGAF00005179407 fastq.gz 6.4 GB
EGAF00005179408 fastq.gz 8.0 GB
EGAF00005179409 fastq.gz 8.0 GB
EGAF00005179410 fastq.gz 7.9 GB
EGAF00005179411 fastq.gz 8.2 GB
EGAF00005179412 fastq.gz 9.0 GB
EGAF00005179413 fastq.gz 9.1 GB
EGAF00005179414 fastq.gz 6.5 GB
EGAF00005179415 fastq.gz 6.6 GB
EGAF00005179416 fastq.gz 7.3 GB
EGAF00005179417 fastq.gz 7.6 GB
EGAF00005179418 fastq.gz 6.4 GB
EGAF00005179419 fastq.gz 6.7 GB
EGAF00005179420 fastq.gz 6.4 GB
EGAF00005179421 fastq.gz 6.6 GB
EGAF00005179422 fastq.gz 6.5 GB
EGAF00005179423 fastq.gz 6.7 GB
EGAF00005179424 fastq.gz 6.4 GB
EGAF00005179425 fastq.gz 6.5 GB
EGAF00005179426 fastq.gz 7.9 GB
EGAF00005179427 fastq.gz 8.1 GB
EGAF00005179428 fastq.gz 8.9 GB
EGAF00005179429 fastq.gz 8.8 GB
EGAF00005179430 fastq.gz 9.4 GB
EGAF00005179431 fastq.gz 9.5 GB
EGAF00005179432 fastq.gz 8.9 GB
EGAF00005179433 fastq.gz 8.9 GB
EGAF00005179434 fastq.gz 9.1 GB
EGAF00005179435 fastq.gz 9.1 GB
250 Files (2.0 TB)