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SNP array datas of Matched cancer-PNE

SNP array datas of Matched cancer-PNE

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Kyoto University policy

DATA ACCESS AGREEMENT These terms and conditions govern access to the managed access datasets (details of which are set out in Appendix I) to which the User Institution has requested access. The User Institution agrees to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom Department of Pathology and Tumor Biology, Kyoto University grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: Department of Pathology and Tumor Biology, Kyoto University and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. User Institution(s): The Institution that has requested access to the Data. 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. 6. The User Institution agrees that the Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. The User Institution agrees to follow the Fort Lauderdale Guidelines (http://www.wellcome.ac.uk/stellent/groups/corporatesite/@policy_communications/documents/web_document/wtd003207.pdf ) and the Toronto Statement (http://www.nature.com/nature/journal/v461/n7261/full/461168a.html). This includes but is not limited to recognising the contribution of the Data Producers and including a proper acknowledgement in all reports or publications resulting from the use of these Data. 8. The User Institution agrees to follow the Publication Policy in Appendix III. This includes respecting the moratorium period for the Data Producers to publish the first peer-reviewed report describing and analysing these Data. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and to follow the U.S. National Institutes of Health Best Practices for the Licensing of Genomic Inventions (2005) (https://www.icgc.org/files/daco/NIH_BestPracticesLicensingGenomicInventions_2005_en.pdf ) in conformity with the Organisation for Economic Co-operation and Development Guidelines for the Licensing of the Genetic Inventions (2006) (http://www.oecd.org/science/biotech/36198812.pdf ). 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify KYOTO UNIVERSITY within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify KYOTO UNIVERSITY prior to any significant changes to the protocol for the Project. 14. The User Institution will notify KYOTO UNIVERSITY as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. KYOTO UNIVERSITY may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary for the Data Producers to alter the terms of this agreement from time to time. As an example, this may include specific provisions relating to the Data required by Data Producers other than KYOTO UNIVERSITY. In the event that changes are required, the Data Producers or their appointed agent will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. 19. This agreement (and any dispute, controversy, proceedings or claim of whatever nature arising out of this agreement or its formation) shall be construed, interpreted and governed by the laws of England and Wales and shall be subject to the exclusive jurisdiction of the English courts. Agreed for User Institution Signature: Name: Title: Date: Principal Investigator I confirm that I have read and understood this Agreement. Signature: Name: Title: Date: Agreed for KYOTO UNIVERSITY Signature: Name: Title: Date: APPENDIX I – DATASET DETAILS APPENDIX II ––PROJECT DETAILS APPENDIX III –– PUBLICATION POLICY APPENDIX I – DATASET DETAILS (to be completed by the data producer before passing to applicant) Dataset reference (EGA Study ID and Dataset Details) Name of project that created the dataset Names of other data producers/collaborators Specific limitations on areas of research Minimum protection measures required File access: Data can be held in unencrypted files on an institutional compute system, with Unix user group read/write access for one or more appropriate groups but not Unix world read/write access behind a secure firewall. Laptops holding these data should have password protected logins and screenlocks (set to lock after 5 min of inactivity). If held on USB keys or other portable hard drives, the data must be encrypted. APPENDIX II – PROJECT DETAILS (to be completed by the Requestor) Details of dataset requested i.e., EGA Study and Dataset Accession Number Brief abstract of the Project in which the Data will be used (500 words max) All Individuals who the User Institution to be named as registered users Name of Registered User Email Job Title Supervisor* All Individuals that should have an account created at the EGA Name of Registered User Email Job Title APPENDIX III – PUBLICATION POLICY KYOTO UNIVERSITY intend to publish the results of their analysis of this dataset and do not consider its deposition into public databases to be the equivalent of such publications. KYOTO UNIVERSITY anticipate that the dataset could be useful to other qualified researchers for a variety of purposes. However, some areas of work are subject to a publication moratorium. The publication moratorium covers any publications (including oral communications) that describe the use of the dataset. For research papers, submission for publication should not occur until 6 months after these data were first made available on the relevant hosting database, unless KYOTO UNIVERSITY has provided written consent to earlier submission. In any publications based on these data, please describe how the data can be accessed, including the name of the hosting database (e.g., The European Genome-phenome Archive at the European Bioinformatics Institute) and its accession numbers (EGAS00001003331), and acknowledge its use in a form agreed by the User Institution with KYOTO UNIVERSITY.

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001003331 Other

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID File Type Size Located in
EGAF00002239489 CEL 65.7 MB
EGAF00002239490 CHP 5.5 MB
EGAF00002239491 CHP 5.5 MB
EGAF00002239492 CEL 65.7 MB
EGAF00002239493 CEL 65.7 MB
EGAF00002239494 CEL 65.7 MB
EGAF00002239495 CHP 5.5 MB
EGAF00002239496 CHP 5.5 MB
EGAF00002239497 CEL 65.7 MB
EGAF00002239498 CHP 5.5 MB
EGAF00002239499 CHP 5.5 MB
EGAF00002239500 CEL 65.7 MB
EGAF00002239501 CHP 5.5 MB
EGAF00002239502 CHP 5.5 MB
EGAF00002239503 CEL 65.7 MB
EGAF00002239504 CHP 5.5 MB
EGAF00002239505 CEL 65.7 MB
EGAF00002239506 CHP 5.5 MB
EGAF00002239507 CEL 65.7 MB
EGAF00002239508 CHP 5.5 MB
EGAF00002239509 CHP 5.5 MB
EGAF00002239510 CHP 5.5 MB
EGAF00002239511 CEL 65.7 MB
EGAF00002239512 CEL 65.7 MB
EGAF00002239513 CEL 65.7 MB
EGAF00002239514 CEL 65.7 MB
EGAF00002239515 CEL 65.7 MB
EGAF00002239516 CEL 65.7 MB
EGAF00002239517 CHP 5.5 MB
EGAF00002239518 CHP 5.5 MB
EGAF00002239519 CHP 5.5 MB
EGAF00002239520 CHP 5.5 MB
EGAF00002239521 CEL 65.7 MB
EGAF00002239522 CEL 65.7 MB
EGAF00002239523 CHP 5.5 MB
EGAF00002239524 CEL 65.7 MB
EGAF00002239525 CHP 5.5 MB
EGAF00002239526 CEL 65.7 MB
EGAF00002239527 CEL 65.7 MB
EGAF00002239528 CHP 5.5 MB
EGAF00002239529 CHP 5.5 MB
EGAF00002239530 CEL 65.7 MB
EGAF00002239531 CEL 65.7 MB
EGAF00002239532 CHP 5.5 MB
EGAF00002239533 CHP 5.5 MB
EGAF00002239534 CEL 65.7 MB
EGAF00002239535 CHP 5.5 MB
EGAF00002239536 CEL 65.7 MB
EGAF00002239537 CEL 65.7 MB
EGAF00002239538 CHP 5.5 MB
EGAF00002239539 CEL 65.7 MB
EGAF00002239540 CEL 65.7 MB
EGAF00002239541 CEL 65.7 MB
EGAF00002239542 CHP 5.5 MB
EGAF00002239543 CEL 65.7 MB
EGAF00002239544 CEL 65.7 MB
EGAF00002239545 CHP 5.5 MB
EGAF00002239546 CHP 5.5 MB
EGAF00002239547 CHP 5.5 MB
EGAF00002239548 CEL 65.7 MB
EGAF00002239549 CEL 65.7 MB
EGAF00002239550 CEL 65.7 MB
EGAF00002239551 CEL 65.7 MB
EGAF00002239552 CEL 65.7 MB
EGAF00002239553 CEL 65.7 MB
EGAF00002239554 CHP 5.5 MB
EGAF00002239555 CHP 5.5 MB
EGAF00002239556 CHP 5.5 MB
EGAF00002239557 CEL 65.7 MB
EGAF00002239558 CHP 5.5 MB
EGAF00002239559 CHP 5.5 MB
EGAF00002239560 CHP 5.5 MB
EGAF00002239561 CEL 65.7 MB
EGAF00002239562 CEL 65.7 MB
EGAF00002239563 CHP 5.5 MB
EGAF00002239564 CHP 5.5 MB
EGAF00002239565 CEL 65.7 MB
EGAF00002239566 CHP 5.5 MB
EGAF00002239567 CHP 5.5 MB
EGAF00002239568 CHP 5.5 MB
EGAF00002239569 CHP 5.5 MB
EGAF00002239570 CEL 65.7 MB
EGAF00002239571 CHP 5.5 MB
EGAF00002239572 CEL 65.7 MB
EGAF00002239573 CEL 65.7 MB
EGAF00002239574 CEL 65.7 MB
EGAF00002239575 CHP 5.5 MB
EGAF00002239576 CHP 5.5 MB
EGAF00002239577 CEL 65.7 MB
EGAF00002239578 CHP 5.5 MB
EGAF00002239579 CHP 5.5 MB
EGAF00002239580 CHP 5.5 MB
EGAF00002239581 CEL 65.8 MB
EGAF00002239582 CHP 5.5 MB
EGAF00002239583 CEL 65.7 MB
EGAF00002239584 CHP 5.5 MB
EGAF00002239585 CEL 65.7 MB
EGAF00002239586 CEL 65.7 MB
EGAF00002239587 CHP 5.5 MB
EGAF00002239588 CEL 65.7 MB
EGAF00002239589 CHP 5.5 MB
EGAF00002239590 CHP 5.5 MB
EGAF00002239591 CEL 65.7 MB
EGAF00002239592 CHP 5.5 MB
EGAF00002239593 CHP 5.5 MB
EGAF00002239594 CEL 65.7 MB
EGAF00002239595 CEL 65.7 MB
EGAF00002239596 CEL 65.7 MB
EGAF00002239597 CEL 65.7 MB
EGAF00002239598 CEL 65.7 MB
EGAF00002239599 CHP 5.5 MB
EGAF00002239600 CHP 5.5 MB
EGAF00002239601 CEL 65.7 MB
EGAF00002239602 CHP 5.5 MB
EGAF00002239603 CHP 5.5 MB
EGAF00002239604 CHP 5.5 MB
EGAF00002239605 CHP 5.5 MB
EGAF00002239606 CEL 65.7 MB
EGAF00002239607 CEL 65.7 MB
EGAF00002239608 CEL 65.7 MB
EGAF00002239609 CHP 5.5 MB
EGAF00002239610 CEL 65.7 MB
EGAF00002239611 CEL 65.7 MB
EGAF00002239612 CHP 5.5 MB
124 Files (4.4 GB)