Whole genome sequencing of childhood acute lymphoblastic leukaemia patients

WGS UKALL2003 data access policy

Both Parties shall comply with Data Protection Legislation in respect of all matters contemplated by this Agreement. The User Institution agrees to only use the Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. If a complaint or request from a data subject exercising any of their rights under Data Protection Legislation is received by a Party, that Party shall be responsible for responding to it. If a personal data breach occurs, the Party that caused the breach shall be responsible for responding to it under Data Protection Legislation, and may notify the other Party at its discretion. If the User Institute should be considered a Restricted Country for the purpose of sharing Data, the parties will sign the UKSCCs to ensure compliance with the Data Protection Legislation as attached in Appendix IIII. The User Institution will notify Newcastle as soon as it becomes aware of a breach of the terms or conditions of this agreement.