SweGen whole-genome sequencing from the Northern Sweden Population Health Study

By depositing data in the FEGA repository, researchers at Uppsala University aims to contribute to science and advance discoveries in biomedicine, healthcare and other fields. Requests for access to data will be assessed based on Swedish laws and regulations, and are only accepted if data will be used for research. For requests from researchers outside the European Union, data will normally only be released to countries that the European Union considers to have an adequate level of data protection, see list of countries here: https://commission.europa.eu/law/law-topic/data-protection/international-dimension-data-protection/adequacy-decisions_en Requests must include information about the following aspects: - As genetic data is regarded as sensitive personal information, a request must describe how the data will be correctly handled in accordance to the laws and ethical guidelines in the receiving country. That should include an approval from an ethics committee or reference to national/equivalent guidelines. - Researchers in the European Union must specify the legal basis according to the General Data Protection Regulation (GDPR) to use the data. - Information on how data will be stored and handled in relation to the information security procedures at the receiving organization. Before data can be released the requester must be prepared to sign a “Warrant to respect” and a “Data Transfer Agreement” specifying the conditions that needs to be fulfilled for data to be released. Requesters need to be aware of that assessment of requests and preparation of agreements may be subject to lead times.