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UKBEC 1st release of Exome data for 65 individuals

UKBEC 1st release of Exome data for 65 neuropathologically confirmed control individuals of European descent.

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The United Kingdom Brain Expression Consortium (UKBEC) DATA ACCESS AGREEMENT

The United Kingdom Brain Expression Consortium (UKBEC) DATA ACCESS AGREEMENT This agreement governs the terms on which access will be granted to the genotype data generated by the United Kingdom Brain Expression Consortium. In signing this agreement, You are agreeing to be bound by the terms and conditions of access set out in this agreement. For the sake of clarity, the terms of access set out in this agreement apply both to the User and the User’s Institution (as defined below). User Institution and User are referred to within the agreement as “You” and “Your” shall be construed accordingly. Definitions: Consortium means the United Kingdom Brain Expression Consortium, a group of Medical Research Council-funded investigators, a list of which can be found on the consortium website means all and any human genetic or RNA-seq transcriptomic, together with allied phenotypic data, obtained from the Consortium. Data Subject means a person, who has been informed of the purpose for which the Data is held and has given his/her informed consent thereto, or, if deceased, for whom the person’s next-of-kin has given his/her informed consent thereto. User means a researcher whose User Institution has previously completed this Data Access Agreement and has received acknowledgement of its acceptance. Publications means, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. User Institution means the organisation at which the User is employed, affiliated or enrolled. Terms and Conditions: In signing this Agreement: 1. You agree to use the Data only for the advancement of medical research on neurological disorders, according to the consent obtained from sample donors. 2. You agree to preserve, at all times, the confidentiality of information and Data pertaining to Data Subjects. In particular, You undertake not to use, or attempt to use the Data to compromise or otherwise infringe the confidentiality of information on Data Subjects and their right to privacy. 3. You agree not to attempt to link the data provided under this agreement to other information or archive data available for the data sets provided, even if access to that data has been formally granted to you, or it is freely available without restriction, without specific permission being sought from the relevent access committees. 4. You agree not to transfer or disclose the Data, in whole or part, or any identifiable material derived from the Data, to others, except as necessary for data/safety monitoring or programme management. Should You wish to share the Data with a collaborator outwith the same Institution, the third party must make a separate application for access to the Data. 5. You agree to use the data for the approved purpose and project described in your application; use of the data for a new purpose or project will require a new application and approval. 6. You accept that Data will be reissued from time to time, with suitable versioning. If the reissue is at the request of sample donors and/or other ethical scrutiny, You will destroy earlier versions of the Data. 7. You agree to abide by the terms outlined in the Consortium 'Publications Policy' as set out in Schedule 1. 8. You agree to acknowledge in any work based in whole or part on the Data, the published paper from which the Data derives, the version of the data, and the role of the Consortium and the relevant primary collectors and their funders. Suitable wording is provided in the Publications Policy given in Schedule 1. 9. You accept that the Consortium, the original data creators, depositors or copyright holders, or the funders of the Data or any part of the Data supplied: a) bear no legal responsibility for the accuracy or comprehensiveness of the Data; and b) accept no liability for indirect, consequential, or incidental, damages or losses arising from use of the Data, or from the unavailability of, or break in access to, the Data for whatever reason. 10. You understand and acknowledge that the Data is protected by copyright and other intellectual property rights, and that duplication, except as reasonably required to carry out Your research with the Data, or sale of all or part of the Data on any media is not permitted. 11. You recognise that nothing in this agreement shall operate to transfer to the User Institution any intellectual property rights relating to the Data. The User Institution has the right to develop intellectual property based on comparisons with their own data. 12. You accept that this agreement will terminate immediately upon any breach of this agreement by You and You will be required to destroy any Data held. 13. You accept that it may be necessary for the Consortium or its appointed agent to alter the terms of this agreement from time to time in order to address new concerns. In this event, the Consortium or its appointed agent will contact You to inform You of any changes and You agree that Your continued use of the Data shall be dependent on the parties entering into a new version of the Agreement. 14. You agree that you will submit a report to the Consortium Data Access Committee, if requested, on completion of the agreed purpose. The Consortium Data Access Committee agrees to treat the report and all information, data, results, and conclusions contained within such report as confidential information belonging to the User Institution. 15. You accept that the Data is protected by and subject to international laws, including but not limited to the UK Data Protection Act 1998, and that You are responsible for ensuring compliance with any such applicable law. The Consortium Data Access Committee reserves the right to request and inspect data security and management documentation to ensure the adequacy of data protection measures in countries that have no national laws comparable to that which pertain in the EAA. 16. This agreement shall be construed, interpreted and governed by the laws of England and Wales and shall be subject to the non-exclusive jurisdiction of the English courts. SCHEDULE 1 Publications Policy Authors who use data from the project are requested to send a draft of the manuscript to one of the UKBEC Principal Investigators, and to include UKBEC as a consortium author. Many submitting journals, and also Pubmed, will allow a footnote listing consortium members. In this case, please contact a UKBEC member for an up-to-date list of Consortium members and their affiliations.Users should note that the Consortium bears no responsibility for the further analysis or interpretation of these data, over and above that published by the Consortium. For and on behalf of User: Name of Applicant(s): _____________________________________ _____________________________________ _____________________________________ _____________________________________ Signature of Applicant(s): _____________________________________ _____________________________________ _____________________________________ _____________________________________ Date: _____________________________________ For and on behalf of User Institution: Signature of Institutional or Administrative Authority: ______________________________________ Print name: ______________________________________ User Institution: ______________________________________ Date: ______________________________________ WHEN SUBMITTING THIS DOCUMENT, PLEASE INCLUDE ALL PAGES OF THE AGREEMENT WITH THIS SIGNATURE PAGE

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001002113 Other
ID File Type Size Located in
EGAF00001418676 fastq.gz 2.9 GB
EGAF00001418677 fastq.gz 2.8 GB
EGAF00001418678 fastq.gz 3.7 GB
EGAF00001418679 fastq.gz 3.6 GB
EGAF00001418680 fastq.bz2 10.6 GB
EGAF00001418681 fastq.bz2 10.4 GB
EGAF00001418682 fastq.bz2 842.5 MB
EGAF00001418683 fastq.bz2 810.2 MB
EGAF00001418684 fastq.bz2 1.5 GB
EGAF00001418685 fastq.bz2 1.5 GB
EGAF00001418686 fastq.bz2 1.3 GB
EGAF00001418687 fastq.bz2 1.3 GB
EGAF00001418688 fastq.bz2 4.3 GB
EGAF00001418689 fastq.bz2 4.4 GB
EGAF00001418690 fastq.bz2 798.0 MB
EGAF00001418691 fastq.bz2 800.7 MB
EGAF00001418692 fastq.bz2 1.3 GB
EGAF00001418693 fastq.bz2 1.3 GB
EGAF00001418694 fastq.bz2 571.4 MB
EGAF00001418695 fastq.bz2 573.0 MB
EGAF00001418696 fastq.bz2 8.6 GB
EGAF00001418697 fastq.bz2 7.5 GB
EGAF00001418698 fastq.bz2 2.8 GB
EGAF00001418699 fastq.bz2 2.8 GB
EGAF00001418700 fastq.bz2 8.0 GB
EGAF00001418701 fastq.bz2 6.7 GB
EGAF00001418702 fastq.bz2 10.6 GB
EGAF00001418703 fastq.bz2 10.2 GB
EGAF00001418704 fastq.bz2 10.0 GB
EGAF00001418705 fastq.bz2 9.1 GB
EGAF00001418706 fastq.bz2 10.0 GB
EGAF00001418707 fastq.bz2 9.5 GB
EGAF00001418708 fastq.gz 1.6 GB
EGAF00001418709 fastq.bz2 7.9 GB
EGAF00001418710 fastq.bz2 1.4 GB
EGAF00001418711 fastq.bz2 1.4 GB
EGAF00001418712 fastq.bz2 3.2 GB
EGAF00001418713 fastq.bz2 3.3 GB
EGAF00001418714 fastq.bz2 1.6 GB
EGAF00001418715 fastq.bz2 1.6 GB
EGAF00001418716 fastq.bz2 838.8 MB
EGAF00001418717 fastq.bz2 841.0 MB
EGAF00001418718 fastq.bz2 6.7 GB
EGAF00001418719 fastq.bz2 5.2 GB
EGAF00001418720 fastq.bz2 7.4 GB
EGAF00001418721 fastq.bz2 6.1 GB
EGAF00001418722 fastq.bz2 11.1 GB
EGAF00001418723 fastq.bz2 11.4 GB
EGAF00001418724 fastq.bz2 2.7 GB
EGAF00001418725 fastq.bz2 2.8 GB
EGAF00001418726 fastq.bz2 11.3 GB
EGAF00001418727 fastq.bz2 11.0 GB
EGAF00001418728 fastq.bz2 1.2 GB
EGAF00001418729 fastq.bz2 1.2 GB
EGAF00001418730 fastq.bz2 7.1 GB
EGAF00001418731 fastq.bz2 5.5 GB
EGAF00001418732 fastq.bz2 1.2 GB
EGAF00001418733 fastq.bz2 1.2 GB
EGAF00001418734 fastq.gz 8.9 GB
EGAF00001418735 fastq.gz 9.2 GB
EGAF00001418736 fastq.gz 9.0 GB
EGAF00001418737 fastq.gz 9.3 GB
EGAF00001418738 fastq.bz2 4.5 GB
EGAF00001418739 fastq.bz2 4.6 GB
EGAF00001418740 fastq.bz2 3.4 GB
EGAF00001418741 fastq.bz2 3.4 GB
EGAF00001418742 fastq.gz 8.8 GB
EGAF00001418743 fastq.gz 9.1 GB
EGAF00001418744 fastq.bz2 2.9 GB
EGAF00001418745 fastq.bz2 2.9 GB
EGAF00001418746 fastq.gz 8.7 GB
EGAF00001418747 fastq.gz 9.0 GB
EGAF00001418748 fastq.bz2 3.7 GB
EGAF00001418749 fastq.bz2 3.8 GB
EGAF00001418750 fastq.gz 6.1 GB
EGAF00001418751 fastq.gz 6.1 GB
EGAF00001418752 fastq.bz2 4.9 GB
EGAF00001418753 fastq.bz2 4.9 GB
EGAF00001418754 fastq.bz2 3.7 GB
EGAF00001418755 fastq.bz2 3.7 GB
EGAF00001418756 fastq.bz2 4.8 GB
EGAF00001418757 fastq.bz2 4.9 GB
EGAF00001418758 fastq.bz2 3.3 GB
EGAF00001418759 fastq.bz2 3.3 GB
EGAF00001418760 fastq.gz 725.6 MB
EGAF00001418761 fastq.gz 698.1 MB
EGAF00001418762 fastq.gz 8.6 GB
EGAF00001418763 fastq.gz 9.1 GB
EGAF00001418764 fastq.bz2 8.7 GB
EGAF00001418765 fastq.bz2 7.8 GB
EGAF00001418766 fq.gz 4.6 GB
EGAF00001418767 fq.gz 4.6 GB
EGAF00001418768 fastq.gz 6.4 GB
EGAF00001418769 fastq.gz 6.5 GB
EGAF00001418770 fastq.bz2 2.1 GB
EGAF00001418771 fastq.bz2 2.1 GB
EGAF00001418772 fastq.gz 6.5 GB
EGAF00001418773 fastq.gz 6.6 GB
EGAF00001418774 fastq.bz2 530.5 MB
EGAF00001418775 fastq.bz2 522.0 MB
EGAF00001418776 fastq.bz2 6.8 GB
EGAF00001418777 fastq.bz2 7.0 GB
EGAF00001418778 fastq.bz2 1.3 GB
EGAF00001418779 fastq.bz2 1.3 GB
EGAF00001418780 fastq.gz 8.2 GB
EGAF00001418781 fastq.gz 8.4 GB
EGAF00001418782 fastq.gz 8.0 GB
EGAF00001418783 fastq.gz 8.3 GB
EGAF00001418784 fastq.gz 8.3 GB
EGAF00001418785 fastq.gz 8.6 GB
EGAF00001418786 fastq.gz 9.4 GB
EGAF00001418787 fastq.gz 9.7 GB
EGAF00001418788 fastq.bz2 3.9 GB
EGAF00001418789 fastq.bz2 4.0 GB
EGAF00001418790 fastq.bz2 1.7 GB
EGAF00001418791 fastq.bz2 1.7 GB
EGAF00001418792 fastq.bz2 3.3 GB
EGAF00001418793 fastq.bz2 3.4 GB
EGAF00001418794 fastq.bz2 3.2 GB
EGAF00001418795 fastq.bz2 3.2 GB
EGAF00001418796 fastq.bz2 6.0 GB
EGAF00001418797 fastq.bz2 6.2 GB
EGAF00001418798 fastq.gz 5.1 GB
EGAF00001418799 fastq.gz 5.2 GB
EGAF00001418800 fastq.bz2 3.4 GB
EGAF00001418801 fastq.bz2 3.4 GB
EGAF00001418802 fastq.bz2 936.7 MB
EGAF00001418803 fastq.bz2 888.2 MB
EGAF00001418804 fastq.gz 8.7 GB
EGAF00001418805 fastq.gz 8.9 GB
130 Files (648.8 GB)