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Whole genome sequencing of EBV Associated Nasopharyngeal Carcinoma

Whole genome sequencing of EBV Associated Nasopharyngeal Carcinoma

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Access to data generated by UHN is made available by completing the data access agreement for review by the data access committee and will be granted to qualified investigators for appropriate use.

DATA ACCESS AGREEMENT These terms and conditions govern access to the managed access datasets (details of which are set out in Appendix I) to which the User Institution has requested access. The User Institution agrees to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom the Data Access Committee (DAC) grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: The Principal Investigator and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. User Institution(s): The Institution that has requested access to the Data. University Health Network: The University Health Network (UHN) is the largest clinical and research hospital in Canada. UHN is affiliated with the University of Toronto and is a member of the Toronto Academic Health Science Network. 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. 6. The User Institution agrees that the Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. The User Institution agrees to follow the Fort Lauderdale Guidelines ( ) and the Toronto Statement ( This includes but is not limited to recognising the contribution of the Data Producers and including a proper acknowledgement in all reports or publications resulting from the use of these Data. 8. The User Institution agrees to follow the Publication Policy in Appendix III. This includes respecting the moratorium period for the Data Producers to publish the first peer-reviewed report describing and analysing these Data. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and to follow the U.S. National Institutes of Health Best Practices for the Licensing of Genomic Inventions (2005) ( ) in conformity with the Organisation for Economic Co-operation and Development Guidelines for the Licensing of the Genetic Inventions (2006) ( ). 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify the DAC within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify the DAC prior to any significant changes to the protocol for the Project. 14. The User Institution will notify the DAC as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. The DAC may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary for the Data Producers to alter the terms of this agreement from time to time. In the event that changes are required, the Data Producers or their appointed agent will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. 19. This agreement (and any dispute, controversy, proceedings or claim of whatever nature arising out of this agreement or its formation) shall be construed, interpreted and governed by the laws of the province of Ontario and PHIPA. Agreed for User Institution Signature: Name: Title: Date: Principal Investigator I confirm that I have read and understood this Agreement. Signature: Name: Title: Date: Agreed for The Data Access Committee Signature: Name: Title: Date: APPENDIX I – DATASET DETAILS APPENDIX II ––PROJECT DETAILS APPENDIX III –– PUBLICATION POLICY

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001004705 Other
ID File Type Size Located in
EGAF00004693816 bam 265.0 GB
EGAF00004693817 bam 361.7 GB
EGAF00004693818 bam 210.7 GB
EGAF00004693819 bam 368.3 GB
EGAF00004693820 bam 219.0 GB
EGAF00004693821 bam 345.4 GB
EGAF00004693822 bam 209.6 GB
EGAF00004693823 bam 397.0 GB
EGAF00004693824 bam 271.2 GB
EGAF00004693825 bam 368.5 GB
EGAF00004693826 bam 223.3 GB
EGAF00004693827 bam 378.0 GB
EGAF00004693828 bam 275.8 GB
EGAF00004693829 bam 387.1 GB
EGAF00004693830 bai 9.5 MB
EGAF00004693831 bai 9.4 MB
EGAF00004693832 bai 9.0 MB
EGAF00004693833 bai 9.2 MB
EGAF00004693834 bai 9.3 MB
EGAF00004693835 bai 9.9 MB
EGAF00004693836 bai 9.1 MB
EGAF00004693837 bai 9.4 MB
EGAF00004693838 bai 10.0 MB
EGAF00004693839 bai 9.9 MB
EGAF00004693840 bai 9.2 MB
EGAF00004693841 bai 9.5 MB
EGAF00004693842 bai 9.3 MB
EGAF00004693843 bai 9.2 MB
EGAF00004719900 bam 198.6 GB
EGAF00004719901 bam 367.2 GB
EGAF00004719902 bam 202.5 GB
EGAF00004719903 bam 373.3 GB
EGAF00004719904 bam 210.5 GB
EGAF00004719905 bam 395.6 GB
EGAF00004719906 bam 210.0 GB
EGAF00004719907 bam 391.6 GB
EGAF00004719908 bam 217.7 GB
EGAF00004719909 bam 393.6 GB
EGAF00004719910 bam 223.4 GB
EGAF00004719911 bam 377.7 GB
EGAF00004719912 bam 207.5 GB
EGAF00004719913 bam 385.3 GB
EGAF00004720196 bai 9.2 MB
EGAF00004720197 bai 9.3 MB
EGAF00004720198 bai 9.0 MB
EGAF00004720199 bai 9.0 MB
EGAF00004720200 bai 9.2 MB
EGAF00004720201 bai 10.0 MB
EGAF00004720202 bai 9.3 MB
EGAF00004720203 bai 9.3 MB
EGAF00004720204 bai 9.8 MB
EGAF00004720205 bai 9.7 MB
EGAF00004720206 bai 9.3 MB
EGAF00004720207 bai 9.9 MB
EGAF00004720208 bai 9.3 MB
EGAF00004720209 bai 9.7 MB
EGAF00004724624 bam 211.6 GB
EGAF00004724625 bam 382.7 GB
EGAF00004724626 bam 215.8 GB
EGAF00004724627 bam 420.4 GB
EGAF00004724628 bam 206.0 GB
EGAF00004724629 bam 386.1 GB
EGAF00004724630 bam 210.3 GB
EGAF00004724631 bam 368.7 GB
EGAF00004724632 bam 205.0 GB
EGAF00004724633 bam 377.0 GB
EGAF00004724634 bam 210.4 GB
EGAF00004724635 bam 384.4 GB
EGAF00004724636 bam 211.2 GB
EGAF00004724637 bam 398.3 GB
EGAF00004724638 bai 9.0 MB
EGAF00004724639 bai 9.0 MB
EGAF00004724640 bai 9.1 MB
EGAF00004724641 bai 9.5 MB
EGAF00004724642 bai 9.3 MB
EGAF00004724643 bai 9.1 MB
EGAF00004724644 bai 9.4 MB
EGAF00004724645 bai 9.5 MB
EGAF00004724646 bai 9.7 MB
EGAF00004724647 bai 9.1 MB
EGAF00004724648 bai 9.5 MB
EGAF00004724649 bai 9.4 MB
EGAF00004724650 bai 9.1 MB
EGAF00004724651 bai 9.0 MB
EGAF00004824262 bam 215.6 GB
EGAF00004824263 bam 397.8 GB
EGAF00004824264 bam 209.6 GB
EGAF00004824265 bam 412.6 GB
EGAF00004824266 bam 209.8 GB
EGAF00004824267 bam 390.3 GB
EGAF00004824268 bam 368.8 GB
EGAF00004824269 bam 201.1 GB
EGAF00004824270 bam 394.4 GB
EGAF00004824271 bam 208.7 GB
EGAF00004824272 bam 411.6 GB
EGAF00004824273 bam 202.2 GB
EGAF00004824274 bam 400.1 GB
EGAF00004824275 bam 208.1 GB
EGAF00004824437 bai 9.6 MB
EGAF00004824439 bai 9.0 MB
EGAF00004824444 bai 9.0 MB
EGAF00004824446 bai 9.0 MB
EGAF00004824450 bai 9.3 MB
EGAF00004824453 bai 9.1 MB
EGAF00004824454 bai 9.8 MB
EGAF00004824458 bai 9.3 MB
EGAF00004824461 bai 9.0 MB
EGAF00004824462 bai 9.0 MB
EGAF00004824474 bai 9.1 MB
EGAF00004824476 bai 9.5 MB
EGAF00004824479 bai 9.3 MB
EGAF00004824480 bai 9.7 MB
EGAF00004838959 bai 8.9 MB
EGAF00004838960 bam 384.1 GB
EGAF00004838961 bam 200.4 GB
EGAF00004838962 bai 10.1 MB
EGAF00004838963 bam 377.4 GB
EGAF00004838964 bam 206.7 GB
EGAF00004838965 bam 368.9 GB
EGAF00004838966 bam 208.6 GB
EGAF00004838967 bai 9.3 MB
EGAF00004838968 bai 9.0 MB
EGAF00004838969 bam 391.2 GB
EGAF00004838970 bam 206.5 GB
EGAF00004838971 bam 383.0 GB
EGAF00004838972 bam 280.9 GB
EGAF00004838973 bai 9.0 MB
EGAF00004838974 bai 9.8 MB
EGAF00004838975 bai 9.0 MB
EGAF00004838976 bai 9.0 MB
EGAF00004838977 bai 9.2 MB
EGAF00004838978 bai 9.5 MB
EGAF00004838979 bai 9.3 MB
EGAF00004838980 bai 9.0 MB
EGAF00004838981 bai 9.4 MB
EGAF00004838982 bai 9.4 MB
EGAF00004896693 bam 281.5 GB
EGAF00004896694 bam 413.3 GB
EGAF00004896695 bam 267.4 GB
EGAF00004896696 bam 312.0 GB
EGAF00004896697 bam 480.3 GB
EGAF00004896698 bam 340.9 GB
EGAF00004896699 bam 405.9 GB
EGAF00004896700 bam 276.1 GB
EGAF00004896701 bam 359.7 GB
EGAF00004896702 bam 288.8 GB
EGAF00004896703 bam 418.1 GB
EGAF00004896704 bam 440.5 GB
EGAF00004896705 bam 403.3 GB
EGAF00004896706 bam 329.9 GB
EGAF00004896707 bai 9.3 MB
EGAF00004896708 bai 9.6 MB
EGAF00004896709 bai 9.9 MB
EGAF00004896710 bai 9.7 MB
EGAF00004896711 bai 9.7 MB
EGAF00004896712 bai 10.1 MB
EGAF00004896713 bai 9.9 MB
EGAF00004896714 bai 10.7 MB
EGAF00004896715 bai 9.9 MB
EGAF00004896716 bai 10.0 MB
EGAF00004896717 bai 9.4 MB
EGAF00004896718 bai 9.4 MB
EGAF00004896719 bai 9.4 MB
EGAF00004896720 bai 10.3 MB
EGAF00004916692 bam 196.6 GB
EGAF00004916693 bam 404.2 GB
EGAF00004916694 bam 381.8 GB
EGAF00004916695 bam 199.8 GB
EGAF00004937043 bam 488.5 GB
EGAF00004937044 bam 426.6 GB
EGAF00004937045 bam 306.8 GB
EGAF00004937046 bam 309.8 GB
EGAF00004937047 bam 303.2 GB
EGAF00004937048 bam 414.1 GB
EGAF00004937049 bam 458.8 GB
EGAF00004937050 bam 324.3 GB
EGAF00004937051 bam 463.2 GB
EGAF00004937052 bam 320.8 GB
EGAF00004937053 bam 435.9 GB
EGAF00004937054 bam 428.6 GB
EGAF00004937055 bam 294.2 GB
EGAF00004937056 bam 382.6 GB
EGAF00004937498 bai 10.1 MB
EGAF00004937499 bai 11.0 MB
EGAF00004937500 bai 9.9 MB
EGAF00004937502 bai 10.4 MB
EGAF00004937506 bai 9.6 MB
EGAF00004937507 bai 10.7 MB
EGAF00004937509 bai 9.7 MB
EGAF00004937512 bai 10.3 MB
EGAF00004937514 bai 10.3 MB
EGAF00004937516 bai 10.2 MB
EGAF00004937517 bai 10.0 MB
EGAF00004937518 bai 9.6 MB
EGAF00004937519 bai 9.8 MB
EGAF00004937520 bai 10.9 MB
EGAF00004964951 bam 386.7 GB
EGAF00004964952 bam 322.8 GB
EGAF00004964953 bam 439.8 GB
EGAF00004964954 bam 288.8 GB
EGAF00004964955 bam 300.5 GB
EGAF00004964956 bam 438.3 GB
EGAF00004964957 bam 282.3 GB
EGAF00004964958 bam 308.9 GB
EGAF00004964959 bam 445.7 GB
EGAF00004964960 bam 383.4 GB
EGAF00004964961 bam 309.0 GB
EGAF00004964962 bam 464.9 GB
EGAF00004964963 bam 322.3 GB
EGAF00004964964 bam 436.4 GB
EGAF00004964965 bai 10.3 MB
EGAF00004964966 bai 9.7 MB
EGAF00004964967 bai 9.9 MB
EGAF00004964968 bai 9.7 MB
EGAF00004964969 bai 9.7 MB
EGAF00004964970 bai 9.6 MB
EGAF00004964971 bai 10.4 MB
EGAF00004964972 bai 9.9 MB
EGAF00004964973 bai 9.5 MB
EGAF00004964974 bai 10.4 MB
EGAF00004964975 bai 9.8 MB
EGAF00004964976 bai 10.2 MB
EGAF00004964977 bai 10.3 MB
EGAF00004964978 bai 9.7 MB
EGAF00004969726 bam 387.0 GB
EGAF00004969727 bam 235.1 GB
EGAF00004969728 bam 376.1 GB
EGAF00004969729 bam 226.1 GB
EGAF00004969730 bam 401.8 GB
EGAF00004969731 bam 270.9 GB
EGAF00004969732 bam 368.4 GB
EGAF00004969733 bam 248.7 GB
EGAF00004969734 bam 372.5 GB
EGAF00004969735 bam 242.1 GB
EGAF00004969736 bam 393.5 GB
EGAF00004969737 bam 285.5 GB
EGAF00004969738 bam 458.1 GB
EGAF00004969739 bam 289.7 GB
EGAF00004969740 bai 9.5 MB
EGAF00004969741 bai 9.4 MB
EGAF00004969742 bai 9.5 MB
EGAF00004969743 bai 10.3 MB
EGAF00004969744 bai 9.9 MB
EGAF00004969745 bai 9.9 MB
EGAF00004969746 bai 9.5 MB
EGAF00004969747 bai 9.3 MB
EGAF00004969748 bai 10.4 MB
EGAF00004969749 bai 9.2 MB
EGAF00004969750 bai 9.8 MB
EGAF00004969751 bai 9.3 MB
EGAF00004969752 bai 10.3 MB
EGAF00004969753 bai 9.8 MB
EGAF00004975268 bam 309.2 GB
EGAF00004975269 bam 420.7 GB
EGAF00004975270 bam 294.0 GB
EGAF00004975271 bam 419.7 GB
EGAF00004975272 bam 270.6 GB
EGAF00004975273 bam 394.2 GB
EGAF00004975274 bam 276.8 GB
EGAF00004975275 bam 390.1 GB
EGAF00004975276 bam 283.4 GB
EGAF00004975277 bam 468.7 GB
EGAF00004975278 bam 442.7 GB
EGAF00004975279 bam 300.9 GB
EGAF00004975280 bai 9.3 MB
EGAF00004975281 bai 9.6 MB
EGAF00004975282 bai 9.3 MB
EGAF00004975283 bai 9.7 MB
EGAF00004975284 bai 10.0 MB
EGAF00004975285 bai 9.4 MB
EGAF00004975286 bai 10.0 MB
EGAF00004975287 bai 9.6 MB
EGAF00004975288 bai 9.4 MB
EGAF00004975289 bai 9.4 MB
EGAF00004975290 bai 9.4 MB
EGAF00004975291 bai 9.6 MB
276 Files (45.4 TB)