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Illumina BeadArray SNP arrays

SNP measurement. Illumina BeadArray SNP arrays for the study "Molecular characteristics in Burkitt lymphoma over age groups"

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Data access policy for data in the study "Molecular characteristics in Burkitt lymphoma over age groups"

DATA ACCESS AGREEMENT These terms and conditions govern access to the managed access datasets (details of which are set out in Appendix I) to which the User Institution has requested access. The User Institution agrees to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom UKM grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: UKM and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. User Institution(s): The Institution that has requested access to the Data. UKM: Universitätsklinikum Münster, Albert-Schweitzer-Campus 1, Gebäude A1, 48149 Münster 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. 6. The User Institution agrees that the Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. The User Institution agrees to follow the Fort Lauderdale Guidelines ( ) and the Toronto Statement ( This includes but is not limited to recognising the contribution of the Data Producers and including a proper acknowledgement in all reports or publications resulting from the use of these Data. 8. The User Institution agrees to follow the Publication Policy in Appendix III. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and to follow the U.S. National Institutes of Health Best Practices for the Licensing of Genomic Inventions (2005) ( ) in conformity with the Organisation for Economic Co-operation and Development Guidelines for the Licensing of the Genetic Inventions (2006) ( ). 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify UKM within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify UKM prior to any significant changes to the protocol for the Project. 14. The User Institution will notify UKM as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. UKM may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary for the Data Producers to alter the terms of this agreement from time to time. As an example, this may include specific provisions relating to the Data required by Data Producers other than UKM. In the event that changes are required, the Data Producers or their appointed agent will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. 19. This agreement (and any dispute, controversy, proceedings or claim of whatever nature arising out of this agreement or its formation) shall be construed, interpreted and governed by the laws of Germany and shall be subject to the exclusive jurisdiction of the German courts. Agreed for User Institution Signature:   Name:   Title:   Date:   Principal Investigator I confirm that I have read and understood this Agreement. Signature:   Name:   Title:   Date:   Agreed for UKM Signature:   Name:   Title:   Date:   APPENDIX I – DATASET DETAILS APPENDIX II ––PROJECT DETAILS APPENDIX III –– PUBLICATION POLICY APPENDIX I – DATASET DETAILS (to be completed by the data producer before passing to applicant) * Dataset reference (EGA Study ID and Dataset Details): * Name of project that created the dataset: * Names of other data producers/collaborators: * Specific limitations on areas of research: * Minimum protection measures required: File access: Data can be held in unencrypted files on an institutional compute system, with Unix user group read/write access for one or more appropriate groups but not Unix world read/write access behind a secure firewall. Laptops holding these data should have password protected logins and screenlocks (set to lock after 5 min of inactivity). If held on USB keys or other portable hard drives, the data must be encrypted. APPENDIX II – PROJECT DETAILS (to be completed by the Requestor) Details of dataset requested i.e., EGA Study and Dataset Accession Number Brief abstract of the Project in which the Data will be used (500 words max) All Individuals who the User Institution to be named as registered users | Name of Registered User | Email | Job Title | Supervisor* | All Individuals that should have an account created at the EGA | Name of Registered User | Email | Job Title | APPENDIX III – PUBLICATION POLICY In any publications based on these data, please describe how the data can be accessed, including the name of the hosting database (e.g., The European Genome-phenome Archive at the European Bioinformatics Institute) and its accession numbers, and acknowledge its use in a form agreed by the User Institution with UKM.

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001005270 Other

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID File Type Size Located in
EGAF00005302380 zip 14.0 MB
EGAF00005302381 zip 13.9 MB
EGAF00005302382 zip 14.0 MB
EGAF00005302383 zip 14.0 MB
EGAF00005302384 zip 13.8 MB
EGAF00005302385 zip 14.0 MB
EGAF00005302386 zip 13.8 MB
EGAF00005302387 zip 14.0 MB
EGAF00005302388 zip 13.8 MB
EGAF00005302389 zip 14.0 MB
EGAF00005302390 zip 14.0 MB
EGAF00005302391 zip 14.0 MB
EGAF00005302392 zip 13.9 MB
EGAF00005302393 zip 14.1 MB
EGAF00005302394 zip 13.9 MB
EGAF00005302395 zip 13.9 MB
EGAF00005302396 zip 13.9 MB
EGAF00005302397 zip 13.9 MB
EGAF00005302398 zip 13.8 MB
EGAF00005302399 zip 14.0 MB
EGAF00005302400 zip 14.0 MB
EGAF00005302401 zip 14.0 MB
EGAF00005302402 zip 13.9 MB
EGAF00005302403 zip 13.8 MB
EGAF00005302404 zip 13.8 MB
EGAF00005302405 zip 13.9 MB
EGAF00005302406 zip 13.8 MB
EGAF00005302407 zip 13.8 MB
EGAF00005302408 zip 13.9 MB
EGAF00005302409 zip 14.0 MB
EGAF00005302410 zip 14.0 MB
EGAF00005302411 zip 13.9 MB
EGAF00005302412 zip 14.0 MB
EGAF00005302413 zip 14.0 MB
EGAF00005302414 zip 14.1 MB
EGAF00005302415 zip 13.9 MB
EGAF00005302416 zip 14.0 MB
EGAF00005302417 zip 13.9 MB
EGAF00005302418 zip 13.9 MB
EGAF00005302419 zip 13.7 MB
EGAF00005302420 zip 14.0 MB
EGAF00005302421 zip 13.8 MB
EGAF00005302422 zip 13.8 MB
EGAF00005302423 zip 14.0 MB
EGAF00005302424 zip 13.9 MB
EGAF00005302425 zip 13.8 MB
EGAF00005302426 zip 13.8 MB
EGAF00005302427 zip 14.0 MB
EGAF00005302428 zip 13.9 MB
EGAF00005302429 zip 13.9 MB
EGAF00005302430 zip 13.9 MB
EGAF00005302431 zip 13.9 MB
EGAF00005302432 zip 13.9 MB
EGAF00005302433 zip 13.9 MB
EGAF00005302434 zip 13.9 MB
EGAF00005302435 zip 13.9 MB
EGAF00005302436 zip 14.0 MB
EGAF00005302437 zip 14.0 MB
EGAF00005302438 zip 14.0 MB
EGAF00005302439 zip 13.9 MB
EGAF00005302440 zip 13.9 MB
EGAF00005302441 zip 13.9 MB
EGAF00005302442 zip 13.7 MB
EGAF00005302443 zip 13.8 MB
EGAF00005302444 zip 13.9 MB
EGAF00005302445 zip 14.0 MB
EGAF00005302446 zip 13.9 MB
EGAF00005302447 zip 13.8 MB
EGAF00005302448 zip 14.0 MB
EGAF00005302449 zip 13.9 MB
EGAF00005302450 zip 13.9 MB
EGAF00005302451 zip 13.9 MB
EGAF00005302452 zip 14.0 MB
EGAF00005302453 zip 13.9 MB
EGAF00005302454 zip 13.9 MB
EGAF00005302455 zip 13.9 MB
EGAF00005302456 zip 14.0 MB
EGAF00005302457 zip 13.9 MB
EGAF00005302458 zip 14.0 MB
EGAF00005302459 zip 13.8 MB
EGAF00005302460 zip 14.0 MB
EGAF00005302461 zip 13.9 MB
EGAF00005302462 zip 13.9 MB
EGAF00005302463 zip 13.8 MB
EGAF00005302464 zip 13.9 MB
EGAF00005302465 zip 13.9 MB
EGAF00005302466 zip 13.9 MB
EGAF00005302467 zip 14.0 MB
EGAF00005302468 zip 13.8 MB
EGAF00005302469 zip 14.0 MB
EGAF00005302470 zip 13.8 MB
EGAF00005302471 zip 14.0 MB
EGAF00005302472 zip 14.0 MB
93 Files (1.3 GB)